In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

22 June, 2024

Long COVID Is Not New; However, There Is A New Definition

NASEM (National Academies of Science, Engineering, and Medicine) has issued its new definition of this condition on June 11: "Long COVID is an infection-associated chronic condition* (IACC) that occurs after SARS-CoV-2 infection and is present for at least 3 months as a continuous, relapsing and remitting, or progressive disease state that affects one or more organ systems."

21 June, 2024

Advocate Says Long COVID Guidelines Will Help Address ‘Medical Gaslighting’

The resource is also set to incorporate treatments for ME/CFS, but there are suggestions patients would benefit more from support for longer consultations.

21 June, 2024

Backing Belief With Better Support For People With Chronic Fatigue

The Australian Government has heard the calls for better support for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), long COVID and related conditions, with funding to develop new Australian clinical guidelines.

21 June, 2024

TNX-102 SL Significantly Reduces Daily Pain, Improves Fibromyalgia Symptoms

Phase 3 data showed TNX-102 SL (sublingual cyclobenzaprine HCI; Tonmya) significantly reduced daily pain and improved broad fibromyalgia symptoms. Tonix Pharmaceuticals presented a poster of their pivotal trial, RESILIENT, at the Annual European Congress of Rheumatology (EULAR) 2024 in Vienna, Austria. The study evaluated TNX-102 SL on pain and broad fibromyalgia symptom management.

20 June, 2024

This ‘Golden Girls’ Episode Is Rooted In A Real-Life Story

Susan Harris bravely incorporated her battle with Chronic Fatigue Syndrome into The Golden Girls. Harris shed light on CFS symptoms and medical skepticism via Dorothy’s storyline, receiving widespread attention. Through Dorothy’s confrontation with Dr. Budd, Harris found closure and stood up for those doubted by doctors.

20 June, 2024

My Sudden Symptoms Left Doctors Stumped—Until A Rare Diagnosis

An article by Zanny Merullo Steffgen, who developed Postural Orthostatic Tachycardia Syndrome, or POTS, a mysterious and often misdiagnosed disease that's part chronic fatigue syndrome, part fibromyalgia, and part dysautonomia—dysfunction of the nervous system that causes changes to blood pressure, heartbeat, and other essential body processes.

19 June, 2024

PIP Payments Of Up To £737 Each Month For People With These 87 Muscle Or Joint Conditions

The latest figures from the Department for Work and Pensions (DWP) show that there are more than 1.1 million adults across Great Britain receiving support through Personal Independence Payment (PIP) for more than 85 musculoskeletal conditions, including 64,202 living in Scotland. Musculoskeletal conditions are injuries and disorders that affect the human body’s movement or musculoskeletal system such as muscles, tendons, ligaments, nerves, discs and blood vessels. Arthritis is a general term that refers to many of these different conditions, however, some common conditions include osteoarthritis, back pain, rheumatoid arthritis, fibromyalgia, osteoporosis, gout, polymyalgia rheumatica, lupus and ankylosing spondylitis.

19 June, 2024

Acclaimed Artist To Showcase Cutting-Edge Digital Works In Rugby

Jason Wilsher-Mills, an acclaimed digital artist who is paralysed from the neck down and suffers from polyneuropathy and chronic fatigue syndrome is bringing his latest exhibition to Rugby Art Gallery and Museum later this month.

18 June, 2024

Months After Being Diagnosed With COVID-19, One In Five People Are Still Suffering From Symptoms, New Research Finds

One in five adults infected with COVID-19 may still be suffering its effects months after their diagnosis, according to new research out of the United States. An investigation by more than two dozen researchers found while the average time of recovery was 20 days, an estimated 22.5 per cent failed to recover 90 days after infection. The report, based out of the United States and published in the Journal of the American Medical Association, mirrored recent reporting by Australian researchers.

18 June, 2024

Not Everyone Who Uses A Wheelchair Is Paralysed. This Is What Ambulatory Users Want You To Know

Kate Pern is an ambulatory wheelchair user who lives with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating multi-system illness that gets worse the more you try to push through it. Many ambulatory wheelchair users, such as Kate, have dynamic disabilities, which means their ability to be active can be different day-to-day. Kate is "predominantly housebound" and uses her non-powered chair in situations where a friend can help push her along. The 36-year-old said being able to remain seated while out of the house prevented her from overexerting herself and ending up "even more disabled". Essentially, it's given her parts of her life back.

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