Current SA Research

Find out what is happening and how you might participate.

Participate in surveys

Find a list of open surveys that are relevant to ME/CFS, related conditions, health care or disability.

Access to primary health care for people who are housebound - stage 1

This proposed four-stage study, Making the invisible visible, is designed to support telehealth in Australia for people who are housebound. Stage 1 has been funded but is being restructured due to the temporary availability of telehealth. The research is occurring under the umbrella of the NHMRC's Centre for Research Excellence in Frailty and Healthy Aging.

Lead researcher: Dr Maria Alejandra Piñero De Plaza

SAHMRI cytokines and clinical symptoms - studies 1 and 2

Study 1

Following a half day of clinical evaluation, participants were waited on hand and foot as blood samples were collected at 7 minute intervals over eight hours. Warmly known as the Vampire Study, the original plan was to look at Leptin and Interleukin-6. Samples from the resulting ME/CFS biobank have since been analysed for additional cytokines based on emerging research. It is anticipated that the biobank will later be used for genetic studies.

Study 1 is no longer recruiting and analysis of the collected samples is continuing.

Study 2

This study will compare people's cytokines on a 'good day' and 'bad day'. Funding has allowed for sample collection in people's homes, enabling people with more severe illness to be involved. International collaboration is allowing many more cytokines to be studied.

People interested in participating, including healthy volunteers, are invited to contact Dr Musker at SAHMRI:

Recruiting continues for Study 2. However, the sample collection has been delayed by the pandemic.

Lead researchers: Dr Michael Musker, Dr Martin Lewis

Click on the image to enlarge.

Perceptions of physical activity and trusted information sources

University of South Australia is inviting Australian adults living with ME/CFS and practitioners treating people with ME/CFS, to participate in an online survey. The study aims to identify the perceptions of people living with ME/CFS and health practitioners regarding the risks and benefits of physical activity and exercise for those with the condition, as well as trusted information sources. The results will provide valuable information regarding the perceptions surrounding physical activity and exercise in the ME/CFS community, aiding in future research and education campaigns.

Recruiting closed 30 June, 2020. Results may become available by the end of 2020.
Lead researcher: Lucille Shannon

UniSA pacing study

Current SA Rsearch HR Monitor wrist device image 250 x 250
Heart rate monitor worn on the wrist

This is a pilot study to explore pacing for symptom management, including evaluation of the feasibility of gradually replacing some passive activities with physical activity.

Heart rate monitoring is integral to the study and was used to assess the safety of activity levels.

This study is no longer recruiting and analysis of the collected data has begun.
Lead researcher: Dr Katia Ferrar

Participate in interstate and overseas research

Find opportunities to participate in research interstate or overseas. Some involve sample collection in South Australia and others can be done purely online.

This does not include surveys. Access to surveys can be found at the top of this page.

If you have an interest in ME/CFS research, you may like to explore:

Last edited: 19 April, 2021