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Our Teams

Most of our volunteers have ME/CFS, including severely,
and some of us care for a person with the illness.

I always admire what you all are doing and how much you have achieved with publicity, research and the incredible commitment despite even having so many health issues to struggle with. Bravo to all of you!

Karin

Management Committee

Our volunteer management committee ensures that ME/CFS SA is managed according to our Constitution, best practice and the law. This includes upholding our mission, vision and priority goals when planning and making decisions.

The needs of those with ME/CFS are complex and considerable. We work towards improving the quality of life for the ME/CFS community by providing advocacy, support services and undertaking projects.

Our volunteers

Our team vollies web

Meet our teams

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To contact any teams, please use see the Contact page.

  • Talking Point See Our Services for more information 
  • Website Maintaining a website is complex. Roles include technical work behind the scenes, writing and sourcing of content, and daily input of emerging information.
  • Memberships and finance  Maintaining records for memberships and finances requires constant attention to accuracy, privacy and completeness. These roles underpin all the work of our organisation.
  • Research We contribute to medical research through consultation, co-design and recruiting participants.
  • Projects Teams arise and disperse as specific projects are undertaken. Some of these involve collaboration with not-for-profit or commercial organisations with no prior connection to the ME/CFS community.

Awareness and Advocacy Team

Our Teams/2016 May Awareness / ABC P1 and P2 with B1 resized half
L-R: P2, B1 and P1
Penelope DF (P2), Penelope Mc (P1)

Our awareness team runs events, creates public displays and seeks opportunities to work through conventional and social media, including Facebook, Twitter and Instagram. We engage with the public, health practitioners, politicians, educators and other people of influence.

Advocacy activities include writing submissions, engaging with policy makers, and representation on government and not-for-profit working groups.
We collaborate at local, state, national and international level to bring about much-needed change.

I am struggling to think of a cohort of people in our community that large for whom there is so little.

Senator Scott Ludlam, Senate Estimates, 21 Oct 2015

Last edited: 11 September, 2024