03 February, 2023

Q&A With Long COVID Patient, Researcher: Treatments Lagging As Cases Rise

As a COVID-19 patient-researcher who still struggles with fatigue and migraines, she has learned to cope with her condition. She directs the Participant Center for the All of Us Research Program, a National Institutes of Health collaboration to build the largest, most diverse health database in history. She relies on a practice called pacing, which helps conserve physical, mental, and emotional energy, to avoid making her symptoms worse.

02 February, 2023

“It’s Time For Action. We Have A Lot Of Work Ahead Of Us”: Researchers In The Netherlands Work With Patients To Solve The Puzzle Of Long COVID

Based on background research into ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome – a serious, long-term illness that affects many body systems), the Erasmus team [at the Erasmus University Medical Centre in Rotterdam] hypothesized that persistent post COVID-19 symptoms may be due to immune disruption triggered by viral infection. Putting this hypothesis to the test, they compared the changes in the immune system of study participants who had had COVID-19 which led to persistent fatigue 6 months after hospital discharge, with those who did not develop this ongoing fatigue. This has revealed some interesting differences, which the research team are now investigating further.

02 February, 2023

Long COVID Has Never Been Taken Seriously. Here’s Where It Left Us

I’m 28 and one of many disabled from the pandemic. We need a public health plan for this.