South Australians
with ME/CFS

by providing services, education and advocacy since 1987 for those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Read some of our stories

In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

05 March, 2024

Scientists Now Have A Better Understanding Of Chronic Fatigue Syndrome

Precisely how many people are currently living with myalgic encephalomyelitis/chronic fatigue syndrome across the nation is a subject of some debate. The CDC estimates the figure at 836,000 to 2.5 million, with 90% of those being undiagnosed. The nonprofit organization Solve M.E. puts that number higher: between 5 million and 9 million. Whether it’s just over 800,000 or 9 million, it’s a harrowing experience for anyone living with the condition — one which has challenged doctors and scientists looking for ways to alleviate it. Our understanding of chronic fatigue syndrome might be expanding with the publication of a new study that explores a wide variety of causes for the condition. “[T]he clinical phenotype is poorly defined, the pathophysiology is unknown and no disease-modifying treatments are available,” the study’s authors write. And one of the goals of the study involved finding a diagnostic biomarker for the condition.

05 March, 2024

Yet Another Woman With Severe ME Has Been Sectioned And Abused By An NHS Hospital

A young woman living with severe myalgic encephalomyelitis (ME) is being catastrophically neglected by an NHS hospital. Millie’s story in itself is shocking. Medical professionals appear to be ignoring official guidelines into the disease – going so far as to section her under the Mental Health Act, and limiting her mother’s visiting rights.

05 March, 2024

Uncovering The Mystery Of ME/CFS: A Groundbreaking Study Sheds Light On The Diseases Origins – Press Stories

Jennifer Caldwell, a participant in a National Institutes of Health (NIH) study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), shares her story of how a weekend swimming trip in 2014 led to a bacterial infection and the onset of this debilitating condition. ME/CFS affects over 4 million U.S. adults, with no approved treatments currently available. The NIH study, recently published in Nature Communications, highlights distinct differences in the bodies of individuals with ME/CFS, showing that it is a biological illness with variations in brain function and the immune system. Despite the challenges faced during the study due to disruptions caused by the COVID-19 pandemic, scientists remain hopeful that their findings will lead to the development of treatments for ME/CFS in the future.

What is ME/CFS? Play

A serious, complex, disabling, neuroimmune condition that affects every system in the body.

Online Resources

Find locally prepared information as well as resources and links from around the world.

How we help...

We provide services that aim to meet the varying needs of our community.

We recognise that some people use the internet and some require hard copies; some members of our community can meet in person whilst others are housebound.

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