Who we are
ME/CFS South Australia helps people with ME/CFS, their carers and family members.
ME/CFS South Australia is a volunteer-run charity that has been helping the ME/CFS community for more than 35 years.
We provide a range of services for the ME/CFS community.
ME/CFS South Australia recognises that many members of the wider community know very little about ME/CFS or about the impact of this illness.
ME/CFS South Australia aims to increase knowledge and understanding through education, research and advocacy, so that people with ME/CFS:
- receive appropriate diagnosis, treatment and care
- receive equitable access to health, welfare, disability, education and community services
- experience improved quality of life.
To further our mission, ME/CFS SA has representatives on decision-making bodies in both government agencies and not-for-profit organisations.
We contribute to medical research through consultation and by recruiting participants to studies that aim to increase understanding of and develop treatments for ME/CFS and related conditions.
ME/CFS South Australia works with partners at local, state, national and international levels to bring about change.
The impact of some of our work
2016 - 2019
Our advocacy led the National Health and Medical Research Council (NHMRC) to commission their first ME/CFS Report, resulting in recommendations for research and clinical guidance in 2019, including millions of dollars in research funding.
We established the ME/CFS Australia Community Facebook group, which now supports over 5,000 members.
2003 - 2004
We contributed to the development of the ME/CFS Guidelines for GPs in SA.
Published in 2004 and based on the Canadian Consensus Criteria, they are still in use locally and elsewhere, including in translation.
Talking Point magazine has been serving local, interstate and international subscribers for over 30 years.
Last edited: 21 July, 2022