In the News

07 December, 2022

We Might Be Over The Pandemic, But It’s Not Over Us

The long-term effects of COVID-19 reveal priorities about who gets to be healthy.

07 December, 2022

Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome In Children And Young People: A British Paediatric Surveillance Unit Study

Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in children aged 5–16 years over 13 months. Secondary objectives: to describe the demographic features, symptoms, impact on activities of daily living, school attendance and time to diagnosis.

07 December, 2022

Long Covid May Be ‘The Next Public Health Disaster’ — With A $3.7 Trillion Economic Impact Rivaling The Great Recession

Sam Norpel is one of millions of Americans with long Covid, also known as long-haul Covid, post-Covid or post-acute Covid syndrome. While definitions vary, long Covid is, at its core, a chronic illness with symptoms that persist for months or years after a Covid infection. Up to 30% of Americans who get Covid-19 have developed long-haul symptoms, affecting as many as 23 million Americans, according to the U.S. Department of Health and Human Services.

06 December, 2022

Making The Invisible Visible — Working With Chronic Illness In the Craft Beer Industry

An article by UK ME/CFS sufferer Liz Chambers.

06 December, 2022

Millions Suffer From Long Covid — And It Costs Them $9,000 A Year In Health-Care Expenses, On Average

Long Covid has affected as many as 23 million Americans to date — and it’s poised to have a financial impact rivaling or exceeding that of the Great Recession. By one estimate, the chronic illness will cost the U.S. economy $3.7 trillion, with extra medical costs accounting for $528 billion.

06 December, 2022

“Helping People Is My Passion, Yet I Can’t Do That Anymore”: How Long COVID Ended The Career Of A Young Paramedic

Roy lives in the town of Rosmalen, near the city of ‘s-Hertogenbosch in the Netherlands. Two years ago, he was a fit and healthy 26-year-old, with everything going right for him. Happily living with his girlfriend, he had just completed his nursing degree and was doing a job he loved, working as an ambulance paramedic. But everything changed in March 2020 when he caught COVID-19.

05 December, 2022

Your Fragrance Could Kill Me: Living With Multiple Chemical Sensitivity

Lori Lovkvist has a little-known condition called multiple chemical sensitivity. It means she can have life-threatening reactions to chemical scents in everyday products. But the main triggers are other people. This has devastated Lori’s life and forced her to isolate from the world.

05 December, 2022

Denmark's Long COVID Patients Feel Abandoned By Pandemic Response

When Pia Krabbe Larsson got sick in the early days of the COVID-19 pandemic, it felt like a bad flu, but she was back at work 10 days later. Then the headaches started, followed by crushing fatigue. By July 2020, Larsson was effectively bedridden and took a leave of absence from her job as a home nurse in Farum, Denmark. She never went back. After visiting multiple doctors, Larsson, 44, was eventually diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a serious postviral condition that affects the nervous system and has been linked by some researchers to long COVID.

05 December, 2022

'Fear Trumps Pain': The Unlikely Relationship Between Horror Films And Chronic Pain

An article by Australian Fibromyalgia sufferer Maddy Ruskin.

04 December, 2022

Novel Brain Imaging Study Seeks Answers To Chronic Fatigue Mystery

With no known cause, objective diagnostic test or cure, the study by the University of Sunshine Coast's Thompson Institute could be the key to finally pinpointing the neurobiological origin of chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME).