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Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

01 July, 2024

'If My Lifeline Is Cut, It Will Be Devastating'

At least 3.3 million people in Britain who have long-term disabilities or ill health currently receive what are known as personal independence payments (PIP) to help them with the extra living costs caused by their conditions. But, with government spending on PIP expected to rise 52% to £32.8bn by 2027-28, several of the main political parties have suggested that if they win the general election on 4 July, they could make major changes to the system. As the BBC has been finding out, recipients in Sheffield say question marks over the post-election future of PIP are already causing them serious concern - even before the polling stations open.

30 June, 2024

What The Hell Is Wrong With Me?

While we know a lot about what can go wrong in the body, we don't know everything. One GP says she has seen hundreds of people with so-called 'functional symptoms' who never get a diagnosis – but nonetheless deserve treatment. In her new book, Dr Gillian Deakin offers a guide to patients and doctors grappling with symptoms without a known cause.

30 June, 2024

PRECISE Trial (Pain RElief Combination Intervention StratEgies): Protocol For The Clinical Trial Of A Pregabalin-Melatonin Combination For Fibromyalgia.

Fibromyalgia is associated with chronic widespread pain and disturbed sleep. Multidisciplinary, multimodal management often includes pharmacotherapy; however, current drugs used to treat fibromyalgia provide meaningful benefit to only 30-60% of treated individuals. Combining two or more different drugs is common in clinical practice with the expectation of better efficacy, tolerability or both; however, further research is needed to identify which combinations actually provide added benefit. Thus, we are planning a clinical trial to evaluate melatonin (MLT)-pregabalin (PGB) combination in participants with fibromyalgia.

29 June, 2024

Young Father With Chronic Fatigue Desperate To Get Well For His Family

Tyrone Hauraki’s limbs feel like they have ropes tied around them. He’s exhausted every day. He has brain fog, and a tickle in his throat that does not go away. Bright lights hurt his eyes, conversations are tiring, and for long periods of time even part-time work has been impossible. For four years, the 28-year-old father of two has tried to get answers for his symptoms. No treatment has worked. His 4-year-old daughter Mila has only known a sick dad, not the vibrant, “life of the party” and “class clown” his friends knew before. Hauraki has been diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). His diagnosis was a process of elimination, something he felt doctors often defaulted to if nothing else made sense. It’s not a diagnosis he completely accepts.

29 June, 2024

Making Visible The Invisible: Supporting Long COVID Patients And The People Caring For Them

We are living through a mass-disabling event: Over 200 million people worldwide have long COVID. In Canada, one in nine people have experienced long COVID symptoms, and this is likely an underestimate. Occurring weeks to months after a COVID-19 infection, this multi-system chronic illness has led to what some have called “the shadow pandemic.” Although millions are navigating this new illness, four years into the pandemic both patients and their caregivers continue to face challenges accessing the information and care they need. Most Canadians have had COVID, and at least one in five have been infected more than once. These trends are troubling because evidence suggests that the risk of acquiring long COVID increases with reinfection.

28 June, 2024

Tired Of Being Tired? It Could Be Chronic Fatigue Syndrome

Clinical psychologist Dr Serena In sheds some light on this lesser-known condition and how sufferers can find help..

28 June, 2024

Creative Craigavon Woman Coordinates Art Classes Giving Hope To Those Living With M.E. And Fibromyalgia

A Craigavon woman living with Myalgic Encephalomyelitis (ME) and Fibromyalgia is inspiring others with similar conditions to tap into their creative side by using art as a means of therapy. Since receiving her diagnoses seven years ago, 39-year-old Claire Kennedy had struggled to reconcile her brain’s wants and needs with her body’s wants and needs.

27 June, 2024

Sign In The Morning May Be Red Flag Of Horror Illness That Leaves Entire Body In Pain

A morning red flag could signify you're suffering from Fibromyalgia, a long-term condition that can lead to pain right across your whole body - and it normally develops between the ages of 25 and 55

27 June, 2024

‘You’re In A Room Of People That Get It’: Northern Colorado Long COVID Support Group Navigates Life After COVID Together

UCHealth facilitators expect growth in numbers, quality as long COVID support groups remain limited.

26 June, 2024

Writing The Unrelenting, Painful Experience Of Chronic Fatigue

David Coventry’s first novel, The Invisible Mile, won the Hubert Church Award for Best First Book at the 2016 Ockham New Zealand Book Awards. His latest work is a self-portrait of his “unrelenting” experience with chronic fatigue. Published by Te Herenga Waka University Press, RRP $38.

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