In the News

27 August, 2023

Chronic Fatigue Syndrome Vs. Narcolepsy: How To Tell The Difference

Both narcolepsy and chronic fatigue syndrome change how you sleep. Here are the similarities and differences between the two conditions.

27 August, 2023

Potential Analgesic Effects Of Psychedelics On Select Chronic Pain Conditions: A Survey Study.

Research published in the European Journal of Pain.

27 August, 2023

Akeley Wood School: A Triumphant Student's A-Level Journey

Results Day success stories often emerge but it’s not often you hear one that transcends all expectations and smashes the glass ceiling. One such story is that of Isabella Verona, a resilient and determined student who defied the odds by achieving brilliant A* A-Level results despite battling the chronic illness, ME. Her journey, marked by unwavering determination, will now come full circle as she looks to stay on at Akeley Wood School, taking up a heartwarming role in the nursery.

26 August, 2023

Long COVID Damage Can Linger For 2 Years, Leading To Elevated Risk Of Disability, Hospitalization, And Death, Landmark New Study Finds

Long COVID—and the increased risk of death, disability, and hospitalization it brings—can persist for two years, according to a landmark study published Monday in Nature Medicine. It’s the first study to look at a broad range of potential health effects stemming from the virus in the two years after infection. Most previous studies had only examined the initial year after infection, or a more narrow range of health effects in a period slightly longer than a year.

26 August, 2023

Results Day: I Got Three GCSEs But Now I'm A Shark Scientist

A profile of Welsh scientist and ME/CFS sufferer Alice Cimino.

26 August, 2023

Chronic Pain In Children – Things Parents Should Know

As a parent, nothing hurts more than seeing your child suffer from physical pain, especially chronic pain. Chronic pain is not just physical but also affects a child’s emotional and psychological well-being. As a parent, it is crucial to be informed about chronic pain to ensure proper diagnosis, treatment, and management. Here are a few things you should know about chronic pain in children.

25 August, 2023

ANZMES Welcomes HSC Recommendations For Improved Access To Disability Services For People With ME/CFS

ANZMES, the National Advisory on Myalgic Encephalomyelitis (ME), has welcomed the Health Select Committee’s (HSC) response to its petition delivered in September 2022, calling on the Government to reclassify ME as a disability.

25 August, 2023

Women With ME Tend To Have More Symptoms Than Men, Study Suggests

Study of chronic fatigue syndrome also finds women are more likely to develop worse symptoms over time.

25 August, 2023

Metrodora Institute Is Exploring ‘The Most Exciting Medical Frontier’

The most exciting medical frontier in the world right now is in the treatment of neuroimmune axis disorders—at least if you ask James Hemp, the chief scientific officer at Metrodora Institute. Along with Fidji Simo and Laura Pace, Hemp co-founded Metrodora Institute, a new clinic in West Valley City focused on these disorders for which there is currently no cure. Neuroimmune axis disorders are those that affect multiple body systems, such as the nervous, immune and gastrointestinal systems. According to a study published in the journal Gastroenterology, about 40 percent of over 70,000 survey respondents met the criteria for functional gastrointestinal disorders, products of “gut-brain interaction.”

24 August, 2023

Godmanchester Woman Completes Solo Channel Swim Using Arms Alone

A woman who finds the touch of water painful has completed a solo English Channel swim powered only by her arms. Sophie Etheridge, 31, took up the challenge to raise the profile of a Swimming Teachers Association campaign for swimmers with disabilities. She has had fibromyalgia and complex regional pain syndrome since 2011.