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In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

16 March, 2024

Why ME/CFS Is Still So Poorly Researched And Treated

Readers of The Guardian respond to George Monbiot’s article on the treatment and attitude of the medical profession to the debilitating condition.

15 March, 2024

On Long Covid Awareness Day Patients Will Be Taking Over Westminster To Make Noise & Raise Awareness

On Friday 15 March campaigners from Not Recovered UK – who all either live with long Covid, myalgic encephalomyelitis (ME, sometimes known as chronic fatigue syndrome, CFS), or are impacted by them – will be taking to the streets of Westminster to raise awareness on Long Covid Awareness Day.

15 March, 2024

Daniel Has Long COVID. It Has Cost Him More Than $100,000

Australia's struggling Long COVID community say the government’s financial support is inadequate.

15 March, 2024

Sex Differences Could Be Key To Treating Long Covid And So Much Else

Among the many mysteries about long Covid, one of the most vexing has been why women seem to experience the condition more often and more severely than men. Now, scientists are starting to think hormones — and the different ways they affect women and men – could be part of the puzzle.

14 March, 2024

Understanding Long COVID: A Call For Better Diagnosis And Treatment

In a recent review published in the journal Nature Reviews Microbiology, a group of authors summarized recent advancements in understanding long coronavirus disease (COVID) 's mechanisms, impacts, and research needs for better diagnostics and treatments.

14 March, 2024

Composer Creates Concerto To Shine A Light On Chronic Illness

A new concerto by US-based Danish composer Martin Byrial aims to shine a light on the stories of families dealing with chronic illness. Concerto for Strings and Organ No. 1 is an homage to the battle for dignity and survival faced by families dealing with chronic illness and disability, aiming to empower the people whose stories it tells.

14 March, 2024

Children’s Long Covid Service Being Planned

Manx Care on The Isle Of Man is working with Alder Hey Hospital to set up an on-island service for children suffering from long Covid and ME/chronic fatigue syndrome.

13 March, 2024

Long Covid And ME: Patients Call For Clinical Trials After Conditions Leave Them Unable To Walk

People living with long term illnesses are calling for more clinical trials in Wales to help tackle their conditions. Around 160,000 people in Wales currently live with a chronic illness.

13 March, 2024

‘You Don’t Want To Get Better’: The Outdated Treatment Of ME/CFS Patients Is A National Scandal

It’s the greatest medical scandal of the 21st century. For decades, patients with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) have been told they can make themselves better by changing their attitudes. This devastating condition, which afflicts about 250,000 people in the UK, was psychologised by many doctors and scientists, adding to the burden of a terrible physiological illness. Long after this approach was debunked in scientific literature, clinicians who championed it have refused to let go. They continue to influence healthcare systems, governments and health insurers. And patients still suffer as a result.

13 March, 2024

As Scientists Study COVID-Chronic Fatigue Ties, NJ Man Seeks Escape From Personal 'Prison'

It’s been four years since James Strazza was diagnosed with an aggressive form of chronic fatigue syndrome, which brings pain with any stimuli. Light, sound and touch can all be torture for Strazza, who grew up in North Jersey but now lives in South Carolina. Sapped of all his energy − another hallmark of the condition − the 35-year-old former music producer spends much of his time in a dark, silent bedroom. "It's like being in prison," he said recently. "You're trapped in your own body, and there's no escape. Every day is a struggle just to do the simplest things."

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