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Resources for Patients/Carers
Find locally prepared information as well as resources and links from around the world.
All resources
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List of Patients/Carers Resources
Resources are organised into related topics for easy access.
More resources to come.
Web pages can also be viewed in languages other than English.
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Post-Exertional Malaise (PEM)
PEM is the unique, identifying feature of ME/CFS.
It is also known as post-exertional neuroimmune exhaustion.
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Pacing
Managing rest and activity to reduce the incidence and severity of
post-exertional malaise (PEM).
![](https://mecfssa.org.au/uploads/_resized/B-Banner-Photos/Other-page-banners/_thumb/Long-COVID-1800-x-680-New.png)
Long COVID and ME/CFS
Those who have lingering symptoms after being infected by COVID-19 are referred to as having Long COVID. Some people with Long COVID will develop ME/CFS.
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Activities of Daily Living (ADLs)
A person's capacity to manage everyday tasks is assessed by measuring ADLs.
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Explore the Research
Linking up with ME/CFS research literature, discussion and analysis.
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Fatigue
The fatigue experienced in ME/CFS is pathological and incapacitating.
It is not normal tiredness.
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Autonomic Dysfunction
People with ME/CFS experience a range of symptoms associated with dysfunction of the autonomic nervous system, also known as 'dysautonomia'.
![](https://mecfssa.org.au/uploads/_resized/B-Banner-Photos/Online-Resources/Symptoms/_thumb/OI-Figurine-1800-x-680.png)
Orthostatic Intolerance (OI)
OI is an inability to function when upright, due to reduced blood flow to the brain.
![](https://mecfssa.org.au/uploads/_resized/B-Banner-Photos/Online-Resources/Symptoms/_thumb/Fog-head-close-up.png)
Neurocognitive Dysfunction
People with ME/CFS experience a range of neurocognitive symptoms.
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