Resources for Patients/Carers
Find locally prepared information as well as resources and links from around the world.
List of Patients/Carers Resources
Resources are organised into related topics for easy access.
More resources to come.
Web pages can also be viewed in languages other than English.
Post-Exertional Malaise (PEM)
PEM is the unique, identifying feature of ME/CFS.
It is also known as post-exertional neuroimmune exhaustion.
Managing rest and activity to reduce the incidence and severity of
post-exertional malaise (PEM).
Long COVID and ME/CFS
Those who have lingering symptoms after being infected by COVID-19 are referred to as having Long COVID. Some people with Long COVID will develop ME/CFS.
Activities of Daily Living (ADLs)
A person's capacity to manage everyday tasks is assessed by measuring ADLs.
Explore the Research
Linking up with ME/CFS research literature, discussion and analysis.
The fatigue experienced in ME/CFS is pathological and incapacitating.
It is not normal tiredness.
People with ME/CFS experience a range of symptoms associated with dysfunction of the autonomic nervous system, also known as 'dysautonomia'.
Orthostatic Intolerance (OI)
OI is an inability to function when upright, due to reduced blood flow to the brain.
People with ME/CFS experience a range of neurocognitive symptoms.