Resources for Patients/Carers
Find locally prepared information as well as resources and links from around the world.
All resources
Mysterious Illness: Living with ME/CFS (2021)
An investigation into CFS focusing on the experiences of three individuals suffering from the illness, with contributions from European researchers.
Dialogues for a neglected illness (2018-2021)
A collection of videos from the UK on different aspects of ME/CFS.
Hope to our Hands: The Hidden Story of ME/CFS in Japan (2020)
A moving documentary of those in Japan living with ME/CFS who are struggling to receive acknowledgement, medical care and support.
LEFT OUT (2020)
This documentary follows the hopes of people in the Norwegian ME/CFS community as they await the outcome of an exciting new study.
Jen Brea's TED Talk (2017)
What happens when you have a disease doctors can't diagnose?
Unrest (2017)
Award-winning documentary, Unrest, is a personal journey from patient to storyteller and the beginnings of #MEAction and the global #MillionsMissing movement.
Forgotten Plague (2015)
Ryan Prior, now a CNN journalist, films a documentary that explores the experiences of himself and others in a medical system that has failed people with ME/CFS; and speaks with the clinicians and researchers who are working to change that.
The Last Great Medical Cover Up (2015)
A UK documentary about the challenges faced by people living with ME, explored through interviews with six people.
Invisible Illness - Stories of Chronic Fatigue Syndrome (2015)
A short documentary from the US about three people with ME/CFS, including Whitney Dafoe.
Voices from the Shadows (2011)
A UK documentary highlighting the stories of five ME patients and their carers, with input from medical experts in ME, Dr Nigel Speight and Prof. Malcolm Hooper; and ME researcher, Prof Leonard Jason.
