Dialogues for a neglected illness: Patients' Accounts of Symptoms (2020)

A collection of eight videos from the UK, on different aspects of people's experiences with ME/CFS.

Dialogues for a neglected illness is a website that hosts a series of documentaries on ME/CFS, developed in the UK with the support of the Wellcome Public Engagement Fund.

Patients' Accounts of Symptoms
includes the following videos:

  • Reduced Function (19 mins 54 secs)
  • How does the disease start? (27 mins 9 secs)
  • Post-Exertional Malaise (22 mins 36 secs)
  • Cognitive Impairment (18 mins 13 secs)
  • Sleep Dysfunction (12 mins 28 secs)
  • Orthostatic Intolerance (11 mins 26 secs)
  • Pain (12 mins 27 secs)
  • Hypersensitivity (13 mins)


In these videos, people with ME/CFS describe their experiences of key symptoms.

Some of these people have only recently become ill with ME/CFS, while others have been ill for decades. Their age of onset ranges from childhood to middle age.

The discussions provide insight into the variety and shared experiences of key symptoms.

Links to supplementary information are also included.

Last edited: 26 December, 2020