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List of Patients/Carers Resources

Resources are organised into related topics for easy access.
More resources to come.
Web pages can also be viewed in languages other than English.

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General

Activities of Daily Living
Explore the Research
Long COVID and ME/CFS
Pacing
Surveys
Which government is responsible?

Symptoms

Post-Exertional Malaise (PEM)
Fatigue
Autonomic Dysfunction
Orthostatic Intolerance
Neurocognitive Dysfunction
Immune Dysfunction
Sleep Dysfunction
Gut
Pain
Sensitivities

Comorbid Conditions

Fibromyalgia (FM)
Multiple Chemical Sensitivity (MCS)
Irritable Bowel Syndrome (IBS)Page is under construction.

Services

Accommodation
Carer Support
Disability
Domestic Assistance
Education
Finance
Legal
Library Service
Social and Mental Health Support
Transport

Australian TV

ME/CFS on Australian TV

Documentaries

2023 -THE DAYS WITH M.E.
2021 - Mysterious Illness: Living with ME/CFS
2020 - Hope to our Hands: The Hidden Story of ME/CFS in Japan
2020 - LEFT OUT
2017 - Jen Brea's TED Talk
2017 - Unrest
2015 - Forgotten Plague
2015 - The Last Great Medical Cover Up
2015 - Invisible Illness - Stories of Chronic Fatigue Syndrome
2011 - Voices from the Shadows
2000 - I Remember M.E.

Personal Stories

Trevor R: Building ME/CFS friendly accommodation.
Lucie D: Developing another artistic method because of the constraints of ME.
Megan R: Using an air filter to deal with mould.
Penelope Mc : Freedom through a footstool.

Last edited: 20 May, 2023