Surveys

Surveys

• Tell about your experiences in healthcare systems in SA
• Chronic illness survey adventure
• Researchers from University of SA and Flinders University are looking to understand consumer healthcare needs

Tell about your experiences in healthcare systems in SA

People living with disability face significant barriers to accessing healthcare systems ranging from the daily grind of inaccessibility, through to serious harm, injury and avoidable death.

Purple Orange is keen to better understand the experiences of people living with disability with regards to health services in South Australia.

If you are a person living with disability or supporter, please complete this survey asking about your experience of negotiating healthcare services in South Australia.
The survey consists of 11 questions and takes about 20 minutes to complete.

Survey

Chronic illness survey adventure

"The Chronic Illness Survey Adventure (Symptom Cluster Characterization in Complex Chronic Disease) is a survey-based study to probe more deeply into ME/CFS, long COVID, POTS, hEDS, and MCAS. Our survey began by examining the symptoms listed in sets of diagnostic criteria for each illness. Then, we incorporated validated surveys for complex symptoms such as pain or fatigue. But that was just the beginning.

Next, we recruited clinical partners to help recruit participants and validate their own patients’ diagnoses, and partners with lived experience of each of these diseases. Together, we gathered patient-reported symptoms not present in any set of criteria.

Now, we need your help to gather the richest dataset on complex chronic disease ever created. Let’s discover more about what we have in common and more about what makes us unique. Join us on this year-long adventure!"

Survey One: up to 30 mins
Surveys Two - Six: 15-20 mins

To register for the survey, sign up here.
Or for a visually quieter page to sign up (less colour, less information, and no moving parts), sign up here.

The surveys will be released monthly, but remain open for a year from May 2021.
All six surveys need to be completed.

Researchers from University of SA and Flinders University are looking to understand consumer healthcare needs

Your support in this study will help us to understand your healthcare needs, determine how responsive your health system is to your needs, and identify areas where health systems could improve to better serve these needs. In appreciation you will be invited to enter a draw to win one of 10 x AU$50 Visa Cards. You will also have the opportunity to receive a copy of the findings.

Survey: 20 mins