Participate in Interstate and Overseas Research

Curtin University and Telethon Kids online wellbeing program
for young people

Try out the new Coping Compass online wellbeing program designed for and by young people with chronic conditions, and provide feedback to the researchers.

If you decide to take part, you will choose one of the three modules to complete and provide feedback on, along with completing four short online surveys over one month. Participants will receive a voucher as reimbursement for their time.

The program has three online modules that teach specific skills to help you cope with everyday challenges. Each module takes 60-90 minutes to complete and can be done at your own pace.

You are eligible to participate if you are:

• Aged 16-25
• Live in Australia
• Diagnosed with a long-term health condition

For more information, scan the QR code to read the Participant Information Sheet or email asha.parkinson@telethonkids.org.au

ME/CFS gene study

Do you have raw genetic data from 23andme.com or dna.ancestry.com?

The Institute for Neuro-Immune Medicine, US, is currently recruiting ME/CFS patients and healthy controls for this one-of-a-kind genetic database for individuals with ME/CFS.

Lead researcher: Dr Nancy Klimas

NCNED: Impact of Illness on Quality of Life

This project aims to follow people with ME/CFS and Long COVID over time to observe changes in symptom presentation and QoL. Further, we aim to make comparisons with other multi-systemic illnesses, such as Fibromyalgia (FM), Multiple Sclerosis (MS), and Rheumatoid Arthritis (RA).

We are recruiting the following participants:

• ME/CFS group: participants who have received a diagnosis of ME/CFS (where diagnosis was made using the CCC 2003 or ICC 2011 definitions).
• Post-viral syndrome group: participants reporting chronic symptoms following a known viral infection but have not received a diagnosis of ME/CFS nor other medical explanation for the symptoms.
• Long COVID or Post COVID-19 Condition: meeting the World Health Organization case definition.
• People with Fibromyalgia, Multiple Sclerosis and Rheumatoid Arthritis.
• Control group: participants who report no health concerns.

The inclusion criteria are as follows:

• Aged 18 to 65 years old.
• Non-smoker.
• No history of malignancy within the past 5 years.
• If you are a person with ME/CFS or Long COVID, you will not be able to participate in this research if you have received a diagnosis of an autoimmune disease.
• Not pregnant or breastfeeding.

This study involves:

• Completion of three online questionnaires (in English) every six months.

Participants will receive a $25 Coles e-voucher and enter the draw to win $75, $100 and $150 Coles e-voucher drawn half-yearly.

If you are interested in participating, please contact ncned@griffith.edu.au or call on (07) 5678 9283.

NCNED: Genotyping Analysis

This project aims to investigate the role of ion channel dysfunction in immune cells of ME/CFS and Long COVID patients through genotyping analysis.

We are recruiting the following participants:

• ME/CFS group: participants who have received a diagnosis of ME/CFS (where diagnosis was made using the CCC 2003 or ICC 2011 definitions).
• Post-viral syndrome group: participants reporting chronic symptoms following a known viral infection but have not received a diagnosis of ME/CFS nor other medical explanation for the symptoms.
• Long COVID group: participants meeting the World Health Organization definition.
• Control group: participants who report no health concerns.

The inclusion criteria are as follows:

• Aged 18 to 65 years old
• Non-smoker
• No current diagnosis of serious chronic illness, e.g. autoimmune, cancer, cardiovascular, diabetes or primary psychiatric diseases
• Not pregnant or breastfeeding

This study involves:

• Donation of 14ml of blood
• Completion of an online questionnaire (in English)

Participants will receive a $25 Coles e-voucher and enter the draw to win $75, $100 and $150 Coles e-voucher drawn half-yearly.

If you are interested in participating, please contact ncned@griffith.edu.au or call on (07) 5678 9283.

NCNED: Ion Channel Dysfunction

This project aims to investigate the role of ion channel dysfunction in ME/CFS and Long COVID patients as potential diagnostic and therapeutic targets.

We are recruiting the following participants:

• ME/CFS group: participants who have received a diagnosis of ME/CFS (where diagnosis was made using the CCC 2003 or ICC 2011 definitions).
• Post-viral syndrome group: participants reporting chronic symptoms following a known viral infection but have not received a diagnosis of ME/CFS nor other medical explanation for the symptoms.
• Long COVID group: participants meeting the World Health Organization definition.
• Control group: participants who report no health concerns.

The inclusion criteria are as follows:

• Australian residents aged 18 to 65 years old
• Non-smoker
• No current diagnosis of serious chronic illness, e.g. autoimmune, cancer, cardiovascular, diabetes or primary psychiatric diseases
• Not pregnant or breastfeeding

This study involves:

• Donations of 84ml of blood
• Completion of an online questionnaire

Participants will receive a $25 Coles e-voucher and enter the draw to win $75, $100 and $150 Coles e-voucher drawn half-yearly.

If you are interested in participating, please contact ncned@griffith.edu.au or call on (07) 5678 9283.

NCNED: Neuroimaging Investigations in ME/CFS

This project aims to collect brain magnetic resonance imaging (MRI) data to investigate changes in ME/CFS and Long COVID patients.

We are recruiting the following participants:

• ME/CFS group: participants who have received a diagnosis of ME/CFS (where diagnosis was made using the CCC 2003 or ICC 2011 definitions).
• Post-viral syndrome group: participants reporting chronic symptoms following a known viral infection but have not received a diagnosis of ME/CFS nor other medical explanation for the symptoms.
• Long COVID group: participants meeting the World Health Organization definition.
• Control group: participants who report no health concerns.

The inclusion criteria are as follows:

• Australian residents aged 18 to 65 years old
• Non-smoker
• No current diagnosis of serious chronic illness, e.g. autoimmune, cancer, cardiovascular, diabetes or primary psychiatric diseases
• Not pregnant or breastfeeding

This study involves:

• Attending a brain MRI imaging appointment at NCNED.
• Completion of an online questionnaire

Participants will enter the draw to win $75, $100 and $150 Coles e-voucher drawn half-yearly.

To cover the cost of travel, participants will receive a voucher valued at $50.

If you are interested in participating, please contact ncned@griffith.edu.au or call on (07) 5678 9283.