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Participate in Interstate and Overseas Research

ME/CFS gene study

Participate in OS Research Gene 1200 x 1200

Do you have raw genetic data from 23andme.com or dna.ancestry.com?

The Institute for Neuro-Immune Medicine, US, is currently recruiting ME/CFS patients and healthy controls for this one-of-a-kind genetic database for individuals with ME/CFS.

Lead researcher: Dr Nancy Klimas


Online National Health Research Survey

This project aims to investigate the Socioeconomic Impact, Quality of Life and Burden of Illness caused by national or individual large-scale life stressors. The National Health Update Survey will ask 10 questions every two weeks on physician satisfaction, diagnosis difficulties, quality of life and burden of illness until December 2020. Participants will receive a $5 Coles e-voucher and enter the draw to win $50, $75 and $100 Coles e-vouchers drawn half-yearly.

Currently Recruiting: Australian citizens formally diagnosed with ME/CFS aged between 18-60 years old.

Please contact NCNED in order to participate: (07) 567 89283 or ncned@griffith.edu.au.

Lead researchers: Prof Sonya Marshall-Gradisnik, Prof Don Staines


Identification of isotype expression of TRP candidate genes in NK cells from ME/CFS patients

The NCNED has previously reported various Transient Receptor Potential Melastatin 3 (TRPM3) dysregulations in ME/CFS patients, including genetic variations, reduced surface expression and impaired ion channel function. This project aims to identify isotype expression of candidate genes for specific TRPs on NK cells from ME/CFS patients. All participants will be asked to donate 85ml of peripheral blood. Participants will also receive a $5 Coles e-voucher and enter the draw to win $50, $75 and $100 Coles e-vouchers drawn half-yearly.

Currently Recruiting: Healthy control participants and Australian citizens formally diagnosed with ME/CFS aged between 18-60 years old.

Please contact NCNED in order to participate: (07) 567 89283 or ncned@griffith.edu.au.

Lead researchers: Prof Sonya Marshall-Gradisnik, Prof Don Staines


Health-related quality of life in patients with ME/CFS: an Australian cross-sectional study

This study aims to further examine the significant impact of sociodemographic and patient symptom characteristics on health-related quality of life (HRQoL) in Australians diagnosed with ME/CFS. The NCNED have previously reported significantly impaired HRQoL scores in ME/CFS patients. This project hopes to provide confirmation of the negative effects ME/CFS have on HRQoL and compare data with past surveys.

NCNED researchers are currently recruiting Australian citizens formally diagnosed with ME/CFS to participate in an online survey seeking information on illness presentation, comorbidities and health-care satisfaction. The survey is open to Australian residents aged between 18-60 years old and will involve the completion of two online surveys. Participants will receive a $5 Coles e-voucher and enter the draw to win $50, $75 or $100 Coles e-voucher drawn half-yearly.

Please contact NCNED in order to participate: (07) 567 89283 or ncned@griffith.edu.au.

Lead researchers: Prof Sonya Marshall-Gradisnik, Prof Don Staines


The economic impacts of ME/CFS in an Australian cohort

The study aims to examine the direct and indirect costs associated with health-care expenditure and loss of income reported by Australian ME/CFS patients. Previously, the NCNED reported that the average annual cost of ME/CFS was estimated at $14.5 billion per year including costs related to health-care, diagnostics, medicines and loss of income. Improved understanding of illness pathology, diagnosis and treatment options may reduce costs and decrease the burden of ME/CFS in Australia.

NCNED researchers are currently recruiting Australian citizens formally diagnosed with ME/CFS to participate in an online survey seeking information on costs directly associated with ME/CFS over a one-month period. The survey is open to Australian residents aged between 18-60 years old and will involve the completion of two online surveys.

Participants will receive a $5 Coles e-voucher and enter the draw to win $50, $75 or $100 Coles e-voucher drawn half-yearly.

Please contact NCNED in order to participate: (07) 567 89283 or ncned@griffith.edu.au.

Lead researchers: Prof Sonya Marshall-Gradisnik, Prof Don Staines


Gastrointestinal symptoms and dietary habits among Australian ME/CFS patients

Description: This cross-sectional study aimed to elucidate the role of gastrointestinal manifestations and diet in the clinical presentation of ME/CFS. Results from this study reported a highly prevalence of gastrointestinal disturbances in ME/CFS patients, whereby majority of patients reported that daily activities significantly influence their symptom presentation. Access to healthcare professionals in relation to gastrointestinal symptoms or diet was also commonly observed by patients. Therefore, this cross-sectional study highlights that gastrointestinal symptoms and diet should be strongly considered for the management of ME/CFS.

NCNED researchers are currently recruiting Australian citizens formally diagnosed with ME/CFS to participate in an online survey seeking information on illness presentation, comorbidities and health-care satisfaction. The survey is open to Australian residents aged 18-60 years old and will involve the completion of three online surveys.

Participants will receive a $5 Coles e-voucher and enter the draw to win $50, $75 or $100 Coles e-voucher drawn half-yearly.

Please contact NCNED in order to participate: (07) 567 89283 or ncned@griffith.edu.au.

Lead researchers: Prof Donald Staines, Prof Sonya Marshall-Gradisnik


Last edited: 12 December, 2020