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Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

19 December, 2022

Finding My Way Out Of The Fog

Long COVID made me retreat from the world, entering into the realm of invisible illnesses where sufferers are ignored, dismissed and struggle to find the help they need.

19 December, 2022

Calls For Greater Government Support For Patients Living With Invisible Illnesses Like Long COVID

Madeline Lebski lives with an invisible illness. It has meant that for the past six years she has often been bed-bound and, at times, unable to do even the simplest tasks, like standing up to have a shower. "Invisible conditions shouldn't mean that people feel invisible as a person and unfortunately, that's what happens," she said. Despite only being able to work about 10 hours a week, the 33-year-old is not eligible for any financial support from the government. She fears with the rise in the number of people suffering from long COVID, more Australians will face similar challenges.

19 December, 2022

Potential New Treatment For “Brain Fog” In Long COVID Patients

Individuals with long COVID, sometimes referred to as “long-haulers,” experience symptoms that may persist for weeks, months, or even years after their acute viral infection. While symptoms vary widely, a common complaint among patients is “brain fog”—a colloquial term for significant, persistent cognitive deficits, with consistent impairment of executive functioning and working memory. Long-haulers may experience a lack of mental clarity, poor focus and concentration, memory problems, difficulty with multi-tasking, and more. Brain fog can be debilitating, but there currently are no treatment options that are approved for the condition. While the number of patients they studied is too small for their results to be definitive, Yale researchers—using their extensive experience with two existing medications—have published initial evidence that those drugs, given together, can mitigate or even eliminate brain fog.

18 December, 2022

Long COVID Might Be Key To Understanding Why Some People Get—and Stay—Sick

Rounding on three years into the coronavirus pandemic, scientists project there are over 100 million COVID long haulers worldwide. A recent Brookings Institution study estimated that around 16 million working-age Americans currently have Long COVID, costing $168 billion a year in lost earnings, not to mention the missed personal and professional opportunities and the high toll it takes on families. And countless more will suffer from it before the pandemic is in our collective rearview mirror. Post-viral illnesses, like chronic fatigue syndrome among others, are not new, but in the wake of Long COVID, how they are analyzed and treated is groundbreaking. The patient-led medicine that has come to the fore to seek answers will have long-lasting ripple effects on the medical establishment and on how post-viral illnesses are diagnosed and treated. It is to this topic that former CNN reporter Ryan Prior turns in his new book. Prior, a long-time chronic fatigue syndrome patient, who also suffered from Long COVID, focuses on long haulers and the patient-centered groups that sprung up around it in The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever (Post Hill Press). In this excerpt, Prior shares how as he was covering the pandemic as a journalist, it became increasingly clear that the tragedies of COVID complications would likely be one of the greatest scientific opportunities of the modern era, helping us understand myriad post-viral illnesses which would, in turn, help millions of people for years to come.

18 December, 2022

Study Suggests Persistent Inflammatory Response Triggered By SARS-CoV-2 May Be Responsible For Observed Sequelae In PASC Patients

In a recent study posted to the bioRxiv* preprint server, researchers assessed the association of enhanced migratory or activated CD8+ T cell and reduced avidity reactive cellular response due to post-acute coronavirus disease 2019 (COVID-19) syndrome (PASC).

18 December, 2022

Study: Cannabis Use Associated With Health Improvements In Patients With Treatment-Resistant Fibromyalgia

Cannabis treatment is associated with quality of life improvements in patients with treatment-resistant fibromyalgia (FM), according to the results of a prospective cohort study published in the journal Pain Practice.

17 December, 2022

Solve M.E. Awarded Grant From Chan Zuckerberg Initiative To Support Patient Engagement In Long Covid Research

New program will address disease disparities and bridge the gap between Long Covid research and patient needs.

17 December, 2022

Woman With Many Health Issues Thankful For Support In The F-M Area

50-year-old Angie Mueller’s health battles started in 2010. That developed into dealing with a list of issues that include Sjorgren’s Syndrome, degenerated disc disease, fibromyalgia and neuropathy. Through this Mueller had lost her job, moved back in with her mother and lives in constant pain. Mueller is facing mounting medical bills from her plethora of health issues. The Fargo-Moorhead and Messiah Lutheran Church communities have come together to help raise support for her.

17 December, 2022

Man Trapped In Mouldy Bath Flat With 'Raw Sewage Leak' For Three Years

Vipul Patel has spoken out about how he was trapped in a mouldy flat in Bath with raw sewage dripping through his ceiling for three years. The 54-year-old entrepreneur said he had suffered from lung infections, fibromyalgia, chronic fatigue and suicidal thoughts while stuck in the unhealthy home.

16 December, 2022

An End To Chronic Pain? Future Treatment Could Look Very Different.

Part 5 of a five-part USA TODAY series exploring chronic pain, the challenges of treatment and the scientific advances offering hope for the future.

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