In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

06 March, 2024

ME/CFS Experts Express 'Dismay' At Aspects Of NIH Study

Two physicians who treat patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have issued a statement expressing gratitude for the recent National Institutes of Health's "deep phenotyping" study of the condition that identified several distinct biologic abnormalities but also criticized some aspects of the study and the way the findings were reported.

06 March, 2024

Is Chronic Fatigue Syndrome All In Your Brain?

An NIH study expands on a body of research locating objective markers of ME/CFS in the brain, the immune system, the gut, and beyond.

05 March, 2024

Scientists Now Have A Better Understanding Of Chronic Fatigue Syndrome

Precisely how many people are currently living with myalgic encephalomyelitis/chronic fatigue syndrome across the nation is a subject of some debate. The CDC estimates the figure at 836,000 to 2.5 million, with 90% of those being undiagnosed. The nonprofit organization Solve M.E. puts that number higher: between 5 million and 9 million. Whether it’s just over 800,000 or 9 million, it’s a harrowing experience for anyone living with the condition — one which has challenged doctors and scientists looking for ways to alleviate it. Our understanding of chronic fatigue syndrome might be expanding with the publication of a new study that explores a wide variety of causes for the condition. “[T]he clinical phenotype is poorly defined, the pathophysiology is unknown and no disease-modifying treatments are available,” the study’s authors write. And one of the goals of the study involved finding a diagnostic biomarker for the condition.

05 March, 2024

Yet Another Woman With Severe ME Has Been Sectioned And Abused By An NHS Hospital

A young woman living with severe myalgic encephalomyelitis (ME) is being catastrophically neglected by an NHS hospital. Millie’s story in itself is shocking. Medical professionals appear to be ignoring official guidelines into the disease – going so far as to section her under the Mental Health Act, and limiting her mother’s visiting rights.

05 March, 2024

Uncovering The Mystery Of ME/CFS: A Groundbreaking Study Sheds Light On The Diseases Origins – Press Stories

Jennifer Caldwell, a participant in a National Institutes of Health (NIH) study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), shares her story of how a weekend swimming trip in 2014 led to a bacterial infection and the onset of this debilitating condition. ME/CFS affects over 4 million U.S. adults, with no approved treatments currently available. The NIH study, recently published in Nature Communications, highlights distinct differences in the bodies of individuals with ME/CFS, showing that it is a biological illness with variations in brain function and the immune system. Despite the challenges faced during the study due to disruptions caused by the COVID-19 pandemic, scientists remain hopeful that their findings will lead to the development of treatments for ME/CFS in the future.

04 March, 2024

New ME/CFS And Long Covid ‘Studies’ Show Junk Science And Media Churnalism Are Alive And Kicking

Two studies – ME, long Covid ones – have been projected into the spotlight thanks to the corporate media. Both studies claim to be groundbreaking in terms of research. However, the reality is both are little more than junk science promoted by people with hidden agendas, and lapped up by churnalists. Meanwhile, it’s left to chronically ill and disabled patients to call the studies out for what they are – at worst, potential scientific fraud. Sadly, this is nothing new. However, the implications of this trash research could still be far-reaching.

04 March, 2024

Long-Term Digestive Health Implications Of COVID-19: A Call For Ongoing Care And Monitoring

A recent study has offered new insights into the long-term impact of COVID-19, warning of persistent risks of serious digestive conditions even months after active infection. This discovery underscores the broader health implications of the virus and the critical need for continuous monitoring and care for those affected.

04 March, 2024

Yvie's Experience With Chronic Fatigue

We had a question come through asking for more info on Yvie's experience with Chronic Fatigue Syndrome and how she's learned to deal with it, especially when balancing her work.

03 March, 2024

The Medical Gaslighting Of Long COVID Patients Could Be Nearing Its End

Presiding at a recent hearing of the Senate Committee on Health, Education, Labor and Pensions, Sen. Bernie Sanders (I-Vt.), addressed the many issues faced by patients suffering from long COVID, an often debilitating condition that can persist for months or years following a SARS-CoV-2 infection. In addition to inadequate research funding and the difficulty of accessing quality care, Sanders observed that “far too many patients have struggled to get their symptoms taken seriously” because “far too many medical professionals have either dismissed or misdiagnosed their serious health problems.”

03 March, 2024

Long COVID In Scotland: NHS Trust Accused Of Medical Negligence

The family of a child suffering Long COVID claims they have faced ‘medical gaslighting’ and been consistently denied NHS care.

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