In the News
Keep up to date with the latest news articles from around the world.
Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.
16 October, 2024
Not Just Miranda Hart: Why Do So Many Celebrities Have Lyme Disease?
As Miranda Hart reveals her Lyme disease diagnosis, UK newspaper The Standard takes a look at the mysterious disease that so many celebrities suffer from.
16 October, 2024
My Son Has ME – Doctors Blamed My Anxiety
As a coroner calls for better treatments and training in chronic fatigue syndrome, a mother tells of her battle for her child's symptoms to be taken seriously.
16 October, 2024
Devastated Father Calls For A Change In ME Care In Northern Ireland, England And Wales After His 27-Year-Old Daughter Who Suffered From Chronic Fatigue Syndrome 'Died Of Malnutrition' In 2021
The heartbroken father of a 27-year-old daughter who died from malnutrition whilst suffering from ME tells why he has fought to try to change the system.
15 October, 2024
Conchis Reflects On Chronic Fatigue Syndrome And New Singles
It has taken five years, but Conchis is finally ready and healthy enough to properly announce herself to the world. Following the release of her first couple of singles entitled ‘Trouble’ and ‘Cray Cray’, Soundsphere had the chance to talk with the mysterious artist.
15 October, 2024
Author Feels More Included Thanks To Chopsticks
An author who is housebound and largely bedbound has been using a miniature cardboard cut out version of herself on chopsticks as a way to "feel more included" in society. Sally Doherty, who lives in Surrey, was diagnosed with myalgic encephalomyelitis (ME) in May 2006 after falling ill in late 2005. She has to spend prolonged periods of time in bed resting, interspersed with essential tasks including eating and showering, as well as writing.
15 October, 2024
Miranda Hart, Lyme Disease And The Doctors That Don’t Think It Exists
As the actor reveals the real reason she has been absent for many years, Zoë Beaty looks at the fatigue-based illness that Hart is suffering from and why it is controversial for so many.
14 October, 2024
Devastated Father Calls For A Change In ME Care In Northern Ireland, England And Wales After His 27-Year-Old Daughter Who Suffered From Chronic Fatigue Syndrome 'Died Of Malnutrition' In 2021
The heartbroken father of a 27-year-old daughter who died from malnutrition whilst suffering from ME tells why he has fought to try to change the system.
14 October, 2024
'I'm Too Tired To Chew Food But Still Can't Get Care For My ME'
Nicole, 52, has had severe ME, also known as chronic fatigue syndrome, for six years. She spends most of her time in bed with the light off and black-out curtains on the windows. Nicole's 30-year-old daughter has given up work to care for her mum - something Nicole finds heart-breaking, though her daughter does it readily. Nicole spoke to the BBC after it asked for people's experiences of ME care on the ME Association Facebook page.
14 October, 2024
Care For People With Severe ME Is “Nonexistent,” Says Coroner In Call To Action
The complete lack of specialist care in England for patients with severe myalgic encephalomyelitis (ME or chronic fatigue syndrome) could cause deaths in future unless urgent action is taken, a coroner has warned. The hard hitting prevention of future deaths (PFD) report by assistant coroner Deborah Archer on the death of Maeve Boothby O’Neill, 27, also highlighted the lack of research funding, training, and guidelines on treating the condition.
13 October, 2024
Miranda Hart Learned To Accept The Limitations Of Chronic Fatigue – And Find Joy
As the title of her book says, comedy writer and actor Miranda Hart hasn’t been entirely honest with us. She rose to fame in 2009 with her sitcom Miranda, took a lead role in the BBC’s Call the Midwife and published four books – all the while her jolly public persona has masked a lifetime of illness and chronic fatigue.
