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In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

12 May, 2024

Water Tower Turns Purple for Fibromyalgia Awareness Day

On May 12, 2024, The Municipality of Meaford’s water tower will be lit purple in support of Fibromyalgia Awareness Day.

12 May, 2024

May 12, 2024: Fibromyalgia Awareness Day

A proclamation by Gretchen Whitmer, governor of Michigan.

12 May, 2024

ME/CFS International Awareness Day

An article by the U.S. Department of Health & Human Services.

11 May, 2024

The Nationwide Problem Of Chronic Pain

I’ll admit I used to inwardly roll my eyes and try to change the subject when people would start to talk about pain. But all that changed when I personally became aware of just how debilitating chronic pain can be. I developed a new understanding and compassion for those who live with pain on a regular basis. The outer world disappears when you are wrapped in a blanket of pain, and until that pain recedes, you’re caught in a world of isolation, unable to move away from your ice pack, your medication or both. The worst part about it is the unpredictability of when that pain will strike next, making it nearly impossible to plan or carry out even the simplest of daily activities.

11 May, 2024

Addiction Medication Offers New Hope For Long COVID Patients

Researchers identified a potential treatment for long COVID by restoring the function of ion channels in immune cells using low-dose Naltrexone. This discovery, detailed in Frontiers in Immunology, mirrors earlier findings with chronic fatigue syndrome (ME/CFS) patients, suggesting a common pathophysiological thread between the two conditions. The breakthrough could alleviate symptoms such as brain fog and muscle fatigue. Clinical trials for both long COVID and ME/CFS are set to begin, testing the efficacy of this repurposed drug.

11 May, 2024

Music Video Of Song About ME And Lyme Disease By UK Musician Ren

From Ren: "There's a really good chance we could chart with the next record drop. This would be the first time in history a song about M.E and lyme disease would make the top 40 which would be huge for awareness. Moments like this are pinch me moments and make me feel good about keeping the promise to my younger self. That's because of all you guys so thankyou so much!! If you wana help secure that spot you can preorder troubles and on iTunes etc by following the link in comments below Let's go!!! First official release of the year!"

10 May, 2024

New Therapeutic Promise For Fibromyalgia

A novel approach using a non-invasive, painless laser called Fibrolux offers new hope for fibromyalgia, a notoriously challenging condition that affects about 4 million US adults, about 2% of the adult population, and is the only Food and Drug Administration (FDA) cleared device for the condition. The laser treatment was shown to reduce pain by more than half and the number of pain points by 20% or more in 87% of patients in a clinical study.

10 May, 2024

Exciting Breakthrough Offers Hope For Long COVID Patients

Researchers from Griffith University’s National Centre for Neuroimmunology and Emerging Diseases (NCNED) have made a groundbreaking discovery that could bring relief to those struggling with Long COVID. In a world-first finding, they’ve identified a way to restore the faulty function of ion channels on immune cells using a well-known drug typically used for other medical purposes.

10 May, 2024

“Tender Points” Documentary Shows Pain + Art = Healing

On May 11th, immerse yourself in an inspiring documentary screening that celebrates community, creativity, and resilience. “Tender Points: A Fibromyalgia Journey” invites you into the world of Lina Alvarez, a courageous pottery studio owner navigating life with fibromyalgia. Through this film, you’ll witness Lina’s quest for relief from chronic illness and discover how she finds solace and strength within her pottery community in Los Angeles.

09 May, 2024

Functional Connectivity Associated With Attention Networks Differs Among Subgroups Of Fibromyalgia Patients: An Observational Case–Control Study

Fibromyalgia is a heterogenous chronic pain disorder diagnosed by symptom-based criteria. The aim of this study was to clarify different pathophysiological characteristics between subgroups of patients with fibromyalgia. We identified subgroups with distinct pain thresholds: those with a low pressure pain threshold (PL; 16 patients) and those with a normal pressure pain threshold (PN; 15 patients). Both groups experienced severe pain. We performed resting-state functional MRI analysis and detected 11 functional connectivity pairs among all 164 ROIs with distinct difference between the two groups (p < 0.001). The most distinctive one was that the PN group had significantly higher functional connectivity between the secondary somatosensory area and the dorsal attention network (p < 0.0001). Then, we investigated the transmission pathway of pain stimuli. Functional connectivity of the thalamus to the insular cortex was significantly higher in the PL group (p < 0.01 – 0.05). These results suggest that endogenous pain driven by top-down signals via the dorsal attention network may contribute to pain sensation in a subgroup of fibromyalgia patients with a normal pain threshold. Besides, external pain driven by bottom-up signals via the spinothalamic tract may contribute to pain sensations in another group of patients with a low pain threshold.

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