In the News
Keep up to date with the latest news articles from around the world.
Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.
30 July, 2024
Inquest Continues Into The Death Of Young ME Sufferer
A senior doctor pleaded with a young woman suffering from severe chronic fatigue syndrome to remain in hospital rather than go home, an inquest heard.
29 July, 2024
Maeve Boothby-O’Neill’s Harrowing Case Highlights Clashing NHS Narratives On ME
The tragic case of Maeve Boothby-O’Neill, being widely reported from the inquest in Exeter, generates more questions than answers about the management of patients with myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). Having been involved in the diagnosis and management of this condition since the mid 1980s, I know of no other disease that provokes such controversy – pitting clinicians, researchers and patients against one another rather than in support.
29 July, 2024
Doctor Asked ME Sufferer To Remain In Hospital, Inquest Hears
A senior doctor pleaded with a young woman suffering from severe chronic fatigue syndrome to remain in hospital rather than go home, an inquest heard. Maeve Boothby-O’Neill, 27, had suffered with myalgic encephalomyelitis (ME) for a decade and was being treated at the Royal Devon and Exeter Hospital before she died at home in October 2021.
29 July, 2024
FDA Grants Fast Track Designation To Cyclobenzaprine Tablets For Fibromyalgia
The FDA has granted fast track designation to a sublingual tablet form of the muscle relaxant cyclobenzaprine hydrochloride for the management of fibromyalgia, according to a press release from the manufacturer.
28 July, 2024
Australians Living With Chronic Pain Are Fighting To Be Heard. It’s A ‘Vicious Cycle’
Everything in Lilley’s life is coloured by pain from fibromyalgia — an incurable condition that causes widespread body pain, fatigue and cognitive issues. It’s an experience she would never wish upon anyone, but Lilley is not alone.
28 July, 2024
ME Patient’s Consultant Tells Inquest Staff’s Unfamiliarity With Condition Was ‘Unfortunate’
A consultant who treated a woman with severe ME has told her inquest it was “very unfortunate” that hospital staff were not familiar with the condition and said there was not enough evidence to conclude the illness is a physical one.
28 July, 2024
Research Finds No Difference In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Prevalence Caused By COVID-19 And Other Acute Illnesses
A new study led by UCLA finds that rates of subsequent myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) following an acute illness were roughly the same between people whose acute illness was due to COVID-19 and those who did not have COVID-19.
27 July, 2024
Doctors Held ‘Outdated’ Views About ME, Inquest Into Sufferer’s Death Hears
A hospital treating a young woman suffering from chronic fatigue syndrome was warned a month before she died about the “dogma” and “outdated” views some doctors held about the debilitating condition, an inquest heard.
27 July, 2024
David J Black: Is Anyone Listening? Does Anyone Care?
On the 1st of May Sir Sajid Javid initiated a parliamentary debate on the UK’s abysmal record on the care and treatment of ME/CFS patients, whose ranks are now much augmented by Long Covid sufferers. There was an almost identical debate held in February 2018 in which the member for Glasgow North West, Carol Monaghan MP, damned a grossly manipulated research trial (PACE) into ME/CFS as “one of the biggest medical scandals of the 21st century”.
27 July, 2024
Chronic Fatigue Syndrome Lacks Specialist Facilities
There is a severe shortage of specialist hospital wards to treat patients with chronic fatigue syndrome as well as a lack of research into the disease, an inquest into the death of a sufferer has heard, writes Rod Minchin from PA.
