In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

04 May, 2024

Science Friday: May 3, 2024

Science Friday is live from Ames, Iowa, home to prairies, greater prairie chickens, and an array of wildlife. Plus, the co-emergence of two periodical cicada broods is underway. Scientists have tips for how to experience the event. And, as the “Universe of Art” podcast turns one, listeners discuss solar music boxes and what it’s like making art with Chronic Fatigue Syndrome.

04 May, 2024

Australia’s State And Services Are Trapping A Woman Living With Severe ME/CFS In Domestic Abuse

A woman living with severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australia is desperately appealing for help to leave an abusive household. The neglect and abuse the Australian state, healthcare system, disability, and domestic violence support services have routinely subjected her to has created a perfect storm – trapping her in this indefensible situation. Her appalling and increasingly life-threatening circumstances underscores the systemic failure of services and support for both ME/CFS and domestic violence.

04 May, 2024

Well-Being Coach Living With Chronic Illness To Host Book Event

A UK well-being and creativity coach who is living with a condition which causes widespread pain and extreme tiredness is hosting an event to help others in similar positions. Amanda Mckinley has self-published her first book after being diagnosed with Fibromyalgia 15 years ago. The promotional event will take place on May 11 in Paisley Central Library - the day before National Fibromyalgia Awareness Day. It will feature her book ‘How I Became a Butterfly - Creative Tools for Coping with Life and Chronic Illness’ as a tool for raising awareness and understanding.

03 May, 2024

Unveiling The Link: Exploring Muscle Oxygen Saturation In Fibromyalgia And Its Implications For Symptomatology And Therapeutic Strategies

A study published in Medical Gas Research.

03 May, 2024

How Telehealth Companies Approach Treating Complex, Chronic Diseases

Telehealth companies are trying to bring virtual care to patients with challenging, hard-to-diagnose chronic conditions like long-term COVID, myalgic encephalomyelitis/chronic fatigue syndrome, and postural orthostatic tachycardia syndrome, or POTS, a condition that results in an elevated heart rate, dizziness and fatigue upon standing up. Here & Now's Deepa Fernandes speaks with STAT's chronic disease reporter Isabella Cueto for a deeper dive into how telehealth startups find opportunity in long-ignored chronic diseases.

02 May, 2024

Long COVID: Millions Have It. Why Do We Still Know So Little?

The CDC estimates 17 million Americans experience long COVID. What have patients and doctors learned about the mysterious illness?

02 May, 2024

Looking at the causes behind mobility issues

Dr Keith Roach, MD, writes in US publication the Durant Democrat: "Exercise helps the vast majority of people improve their mobility, but there are exceptions. Many people with myalgic encephalomyelitis/ chronic fatigue syndrome are intolerant of exercise, and overdoing it can lead their condition to worsen. This syndrome has also been known as systemic exertion intolerance disease. Well-meaning physicians, friends and family might have recommended exercise to a patient, which could have caused them to have a flare-up."

01 May, 2024

The Long Path Of Long COVID

It's been more than four years since Covid first appeared and upended our lives, but for thousands of Australians, Long Covid has left them dealing with symptoms long after the original infection. What do we know, and what we still need to know, about the symptoms, the treatment, and the policies around Long Covid?

01 May, 2024

Fraud, Waste And Abuse: How Some Doctors Are Exploiting Medicare And Turning Patients Into 'Cash Cows'

Lisa Crotty is one of several Australian chronic pain sufferers whose medical bills reveal anaesthetists apparently billing for fictitious services and hospitals, anaesthetists and physicians submitting inflated bills. It follows a Four Corners investigation into the chronic pain industry, which exposed over treatment and questionable billing practices in the multi-billion-dollar sector. The revelations prompted Federal Health Minister Mark Butler to ask his department to "urgently" investigate the matters further. There are also now urgent calls for reforms.

01 May, 2024

Under Half Of Fibro Patients Use Evidence-Based Drugs

Less than half of fibromyalgia patients are using evidence-based medication to manage their symptoms due to the high costs of the drugs, research has shown. The Monash University study found that 48.5% of participants whose medical charts were reviewed used at least one evidence-based medication to manage their symptoms. “Australian fibromyalgia patients use a wide variety of therapeutics to manage their symptoms and are more likely to use medications that are not evidence-based,” the researchers said in Internal Medicine Journal.

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