In the News

18 March, 2024

Parents Of Son With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Want More Research Into Disease

An article about Australian ME/CFS sufferer Dan Harris.

18 March, 2024

New Landmark Study Offers Hope To People With Long Covid

A new landmark study from the National Institutes of Health sheds important light on ME/CFS and offers hope for the millions of people living with this disease and the closely related condition of long covid. This study is notable in that it is the most in-depth and multidisciplinary study of ME/CFS to date, involving more than 75 investigators across 15 NIH institutes and taking nearly eight years to complete. The manuscript, published in Nature Communications, is 29 pages long, with more than 60 pages of supplemental information.

17 March, 2024

'She's A Soulmate' - The Incredible Impact One Woman's Dog Has Had On Her Life

A profile of UK ME/CFS sufferer Laura Wild and her support dog, Summer.

17 March, 2024

Queensland's Chief Health Officer Says It's Time To Stop Using The Term 'Long COVID'

The term "long COVID" should be scrapped, according to Queensland's Chief Health Officer, because it creates unnecessary fear — and is "probably harmful". John Gerrard said the description wrongly implied long-term post-COVID viral symptoms were "somehow unique and exceptional" to other viral infections, but new research suggested they were indistinguishable.

17 March, 2024

It’s Been 4 Years Since COVID Hit Michigan. For Long COVID Patients, The Pandemic Isn’t Over.

Four years have passed since Ohio Gov. Gretchen Whitmer declared a state of emergency to address the COVID-19 pandemic on March 10, 2020. But the disease remains more than a memory, especially for those whose lives are continually impacted by the illness. Robert McCann, 46, was exposed to COVID-19 at a Lansing-area veterinary clinic which was tied to an outbreak of the disease in June 2020. About a day after testing positive, McCann, the executive director of the K-12 Alliance of Michigan, said he started to feel sick. “At the time, it wasn’t anything, like, horrible and the symptoms went away probably after a week or so,” McCann said. “I figured, OK, that wasn’t too bad, I’ve moved on.” In the fall, McCann’s symptoms returned and persisted, despite testing negative for the illness. More than three and a half years later, McCann says he still faces issues with severe fatigue, nerve pain and brain fog from Long COVID.

16 March, 2024

Critical Care Physician Battles Long COVID With Hope And Grit

An article by US doctor and long-COVID sufferer Sonali Mantoo, MD.

16 March, 2024

How Long Will Long COVID Last? Many Battling Symptoms Years Later

March 9 marks four years since Ohio Governor Mike DeWine signed an executive order declaring a state of emergency in Ohio. It was one of the first big signs that COVID-19 would change our world. The pandemic has also changed the lives of people who got sick and never fully recovered. News 5 is following through with a doctor and a patient we spoke with two years ago to see what’s been learned about long COVID.

16 March, 2024

Why ME/CFS Is Still So Poorly Researched And Treated

Readers of The Guardian respond to George Monbiot’s article on the treatment and attitude of the medical profession to the debilitating condition.

15 March, 2024

On Long Covid Awareness Day Patients Will Be Taking Over Westminster To Make Noise & Raise Awareness

On Friday 15 March campaigners from Not Recovered UK – who all either live with long Covid, myalgic encephalomyelitis (ME, sometimes known as chronic fatigue syndrome, CFS), or are impacted by them – will be taking to the streets of Westminster to raise awareness on Long Covid Awareness Day.

15 March, 2024

Daniel Has Long COVID. It Has Cost Him More Than $100,000

Australia's struggling Long COVID community say the government’s financial support is inadequate.