In the News
Keep up to date with the latest news articles from around the world.
Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.
23 June, 2024
FIRST Questionnaire Can Help Detect Fibromyalgia In RA Patients
A diagnosis of fibromyalgia was associated with a negative impact on the evolution of rheumatoid arthritis (RA), leading investigators of a recent study to call for a greater emphasis on optimal screening strategies. Results of the study, which were presented at the Annual European Congress of Rheumatology (EULAR) 2024, indicate presence of fibromyalgia was associated with greater disease activity in RA, but investigators also found a novel self-questionnaire could help improve diagnosis of concomitant fibromyalgia in this patient population.
23 June, 2024
“No Amount Of Coffee Can Keep Me Awake”: Impact Of Long COVID On Women
Women’s health has often been marginalized in medical research and healthcare practices, historically. For many years, clinical studies primarily focused on male participants, leading to a significant gap in understanding and addressing the unique health needs of women. This oversight has resulted in delayed diagnoses, inadequate treatment protocols, and a general lack of awareness about conditions that disproportionately or exclusively affect women. The repercussions of this neglect are evident in various health outcomes, including the management of chronic illnesses, reproductive health, and more recently, the differentiated impact of conditions like long COVID.
23 June, 2024
Woman Criticises Roman Allied Pharmacy In Wiltshire
A Wiltshire woman says she was left in “chronic pain” after a row over “missing medication” from a pharmacy. Last month Danielle Dawkins visited Allied Pharmacy in Durrington to pick up medication used to treat her fibromyalgia. But when she and her husband returned home, she claimed she was “missing” her 200mg prescription of Pregabalin, taken to treat nerve pain. Without this medication, Mrs Dawkins suffers serious pain, but when she reported the issue pharmacy staff maintained the medication was dispensed.
22 June, 2024
New Long COVID/CFS Guidelines To Drop Graded Exercise Therapy
New Australian guidelines for treating long covid and myalgic encephalomyelitis/chronic fatigue syndrome are to be developed by the National Health and Medical Research Council – but we already know what the biggest change will be. They will recommend against graded exercise therapy, which patient advocates say is discredited, harmful and out of step with other countries’ guidelines.
22 June, 2024
‘A 30-Second Walk Would Exhaust Me Beyond Reason’: Natacha’s Life With Long Covid
Natacha Gray had an active life, diving, climbing and playing music, before illness left her so tired she would collapse on the way to the couch. She discusses two and a half devastating years – and how she stays optimistic.
22 June, 2024
Long COVID Is Not New; However, There Is A New Definition
NASEM (National Academies of Science, Engineering, and Medicine) has issued its new definition of this condition on June 11: "Long COVID is an infection-associated chronic condition* (IACC) that occurs after SARS-CoV-2 infection and is present for at least 3 months as a continuous, relapsing and remitting, or progressive disease state that affects one or more organ systems."
21 June, 2024
Advocate Says Long COVID Guidelines Will Help Address ‘Medical Gaslighting’
The resource is also set to incorporate treatments for ME/CFS, but there are suggestions patients would benefit more from support for longer consultations.
21 June, 2024
Backing Belief With Better Support For People With Chronic Fatigue
The Australian Government has heard the calls for better support for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), long COVID and related conditions, with funding to develop new Australian clinical guidelines.
21 June, 2024
TNX-102 SL Significantly Reduces Daily Pain, Improves Fibromyalgia Symptoms
Phase 3 data showed TNX-102 SL (sublingual cyclobenzaprine HCI; Tonmya) significantly reduced daily pain and improved broad fibromyalgia symptoms. Tonix Pharmaceuticals presented a poster of their pivotal trial, RESILIENT, at the Annual European Congress of Rheumatology (EULAR) 2024 in Vienna, Austria. The study evaluated TNX-102 SL on pain and broad fibromyalgia symptom management.
20 June, 2024
This ‘Golden Girls’ Episode Is Rooted In A Real-Life Story
Susan Harris bravely incorporated her battle with Chronic Fatigue Syndrome into The Golden Girls. Harris shed light on CFS symptoms and medical skepticism via Dorothy’s storyline, receiving widespread attention. Through Dorothy’s confrontation with Dr. Budd, Harris found closure and stood up for those doubted by doctors.
