In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

03 February, 2023

Q&A With Long COVID Patient, Researcher: Treatments Lagging As Cases Rise

As a COVID-19 patient-researcher who still struggles with fatigue and migraines, she has learned to cope with her condition. She directs the Participant Center for the All of Us Research Program, a National Institutes of Health collaboration to build the largest, most diverse health database in history. She relies on a practice called pacing, which helps conserve physical, mental, and emotional energy, to avoid making her symptoms worse.

02 February, 2023

“It’s Time For Action. We Have A Lot Of Work Ahead Of Us”: Researchers In The Netherlands Work With Patients To Solve The Puzzle Of Long COVID

Based on background research into ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome – a serious, long-term illness that affects many body systems), the Erasmus team [at the Erasmus University Medical Centre in Rotterdam] hypothesized that persistent post COVID-19 symptoms may be due to immune disruption triggered by viral infection. Putting this hypothesis to the test, they compared the changes in the immune system of study participants who had had COVID-19 which led to persistent fatigue 6 months after hospital discharge, with those who did not develop this ongoing fatigue. This has revealed some interesting differences, which the research team are now investigating further.

02 February, 2023

Long COVID Has Never Been Taken Seriously. Here’s Where It Left Us

I’m 28 and one of many disabled from the pandemic. We need a public health plan for this.

02 February, 2023

How A Trip To India Reduced Healthy 37-Year-Old Aussie To A Bed-Bound Patient Only Able To Move For 15-Minute Blocks A Few Times A Day

A man who became sick after a mission trip to India almost a decade ago is still in the grips of a monumental health battle, only managing to move in 15-minute blocks before becoming exhausted. Matthew Mason, 37, from Athelstone, in Adelaide's east, contracted Lyme disease when he was bitten by a tick carrying borrelia burgdorferi bacteria in December 2013 in a remote part of India. The debilitating illness has left him unable to participate in activities he used to enjoy such as attending church, working, and creating videos for his YouTube channel.

01 February, 2023

Belle And Sebastian Scraps Tour Plans Due To Stuart Murdoch’s Health Struggles

Belle and Sebastian has cancelled its spring North American tour while frontman Stuart Murdoch deals with health issues related to a long-time struggle with chronic fatigue syndrome. The outing was scheduled to begin April 24 in Mexico and follows the cancellation of a planned U.K., Europe, and South American tour last fall.

01 February, 2023

Disabled Cheltenham Woman Who Does Not Claim Benefits Sent £909 HMRC Overpayment Letter

Mother-of-five Vicky Timlin, 45 from Cheltenham suffers with chronic fatigue syndrome as well as depression. Yet Vicky has taken the decision to not claim benefits and try and work as long as she can till her body prevents her doing so but since she ended her Tax Credit claim in 2021 she has not been told to repay £909 by HMRC but she is adamant she does not owe this money.

01 February, 2023

Brain Fog To 'Jet Lag': Comedian Shares Reality Of Living With Condition That 'People Don't Believe Is Real'

A Morecambe-based comedian, Rich Davenport has shared his story on life with ME and how charities are working to change the stigma.

31 January, 2023

Long COVID May Deal “Lifelong Disability” If No Action Taken Says New Research

Review finds long COVID effects major systems similar to chronic fatigue syndrome, POTS and other disorders.

31 January, 2023

New Study: 65 Million People Suffer From Long Covid

According to a new overview study in the journal Nature Reviews Microbiology, Long Covid follows at least ten percent of Covid infections. This means that around 65 million people worldwide are now suffering from the late effects of corona.

31 January, 2023

Woman With Rare Disease Needs Assistance

Gcilima woman, Zodwa Mkhize who has a rare health disorder, Fibromyalgia also known as Fibromyalgia Syndrome, wishes for a Good Samaritan to help her son, Nzuzo Shezi get a job and for a wheelchair-friendly home as she is unable to walk.

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