Media Essentials
Spokesperson, facts, photos, and more.


Spokesperson
Penelope McMillan
Advocacy Lead, ME/CFS SA Inc.
Spokesperson, ME/CFS Australia Ltd.
pmcmillan@mecfssa.org.au
A presentation featuring Penelope at Parliament House, Canberra.
Media Release
If you would like a copy of our media release for May 2024, please contact us or email our spokesperson at pmcmillan@mecfssa.org.au.
Briefing Paper
ME/CFS South Australia has a one-page briefing paper explaining the illness, with up-to-date data on ME/CFS in Australia.
Please email or phone 0493 468 288 for the current version.
How to report with accuracy and sensitivity on contested illnesses

Reporting
Feature article by science writer, Julie Rehmeyer, on how to write about ME/CFS
Images
Poster on how to represent ME/CFS more accurately in images
Language
Use of the word 'fatigue' has created misunderstanding, dismissal and stigma for people with ME/CFS and has hindered progress in ME/CFS research and clinical practice.
It is important to differentiate between fatigue, chronic fatigue, chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME).
Lived-experience videos
Two short videos of lived-experience were presented at Parliament House in SA in June 2024. Voice and video clips may be reproduced with attribution to ME/CFS South Australia Inc. ME/CFS South Australia Inc. retains copyright of these images.
Photo Gallery
For use with attribution to ME/CFS South Australia Inc.
ME/CFS South Australia Inc. retains copyright of these images.
Professional stock images
The German Association for ME/CFS has generously provided 43 professional stock photos for use in media articles, which accurately depict the reality of people living with ME/CFS. The images are available in high quality JPEG and very high quality TIFF.
Details regarding attribution and conditions of use apply.
Further information
Let us know what aspect of ME/CFS you are interested in. We are more than happy to talk and provide the appropriate material. Please contact us.
Last edited: 09 January, 2025