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Event on 18 June, 2024

Parliament House Event, June 2024

Hon Emily Bourke MLC has arranged an opportunity for our ME/CFS community to meet with SA politicians.

Live stream 18 June at 1:00pm

The formal part of the event will be live streamed via Microsoft Teams.  You do not need to have Microsoft Teams on your computer. It can be accessed from Chrome or any other browser.

Join the meeting now

Meeting ID: 493 887 223 318
Passcode: deU5q8


Invitation

SA Parliament House event – Tuesday 18 June, 1:00-2:00pm

This is an invitation to attend in person or submit a photograph so that your presence is recognised. We aim to make ME/CFS visible to the politicians of South Australia.

Attending in person 

  • Arrive 12:45pm for a 1:00pm start
  • We have received special permission for people with limited mobility to use the Permit Zone out the front of Parliament House on North Tce for passenger drop-off between 12:30 and 1:00pm and for pick-up afterwards between 2:00-2:30pm.
  • Meet in the foyer of Parliament House
    • Accessibility entrance: The accessible entrance to Parliament House is available via the Old Parliament House doors on North Terrace. Please call (08) 8237 9200 for assistance. There is an intercom at the entrance doors for your convenience.
2022 #MM Koala
Locals rest in preparation for #MillionsMissing
  • Wear your #MillionsMissing t-shirt or a red top. If you don't have any red, then try for the traditional blue that represents ME/CFS and SA's Forget-ME-Not logo. If this is all too difficult, please join us anyway!
  • When you arrive, if you are not willing to be photographed for the web page or social media, please let one of the Penelopes know.
  • Carers are welcome with or without the person they care for.

Please RSVP to  pdelfante@mecfssa.org.au by Wednesday 12 June. 

You may still attend if you do not RSVP, but your entry into Parliament House will be slower. 

If you RSVP and do not turn up, we will understand.

Attending via photograph

This opportunity has now closed as we have submitted the images to Parliament House.

If you are not able to join us in person, please consider sending us a photo. We are seeking a photo of you from when you were healthy, participating in an activity that you can no longer do. This might be as simple as standing outdoors, or eating with friends.

Please send your photos to pdelfante@mecfssa.org.au by 1 June. Please also include the year that you became ill with ME/CFS.

Here is a sample of what we plan to do with the photographs, based on a past #MillionsMissing campaign.

Click on the image to enlarge.

Invite your local state MP and members of the Upper House 

Whether or not you are able to attend in person or through a photograph, please consider inviting your local member of parliament and members of the Upper House to attend.

We suggest you include the following information:

  • I am a constituent
  • a brief introduction to your experience with the illness, including how long you have had ME/CFS
  • ask them to attend the lunch time meeting
  • include that you are too disabled by the illness to attend or that you look forward to meeting them on the day

MPs contact details: https://www.parliament.sa.gov.au/en/How-Do-I/Contact-a-Member

Hon Emily Bourke MLC

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We are delighted to have the support of Hon Emily Bourke MLC, Assistant Minister to the Premier and Assistant Minister for Autism, who is organising this event in Parliament House for parliamentarians to learn about ME/CFS. 

Emily has asked that as many people as possible attend, to help MPs learn about the nature and impact of ME/CFS on individuals and those who care for them.


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Awareness ribbons will also be available for a donation of $1.

Last edited: 14 June, 2024