In the News

Keep up to date with the latest news articles from around the world.

Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.

17 December, 2023

Unsupported And Isolated: Living And Dying With ME/CFS

An inquest hearing in the UK has heard how 27-year-old Maeve Boothby-O'Neill died from complications relating to ME, following years of inadequate care from the National Health Service. At least 25 thousand people live with ME (Myalgic Encephalomyelitis), also known as chronic fatigue syndrome in New Zealand. The real number is likely higher, due to the nature of it being an 'invisible illness'. Maeve's father Sean O'Neill is a Times correspondent. He is joined by leading researcher in ME/CFS in New Zealand, University of Otago Emeritus Professor Warren Tate.

16 December, 2023

We Followed 14 ‘Long Haulers’ For 3 Months. Here’s What They Told Us About Living With Long COVID

Over three months, we followed 14 people suffering from long COVID – or “long haulers” – to better understand their experiences. In particular, we wanted to see how their ability to manage their health (called agency) and the help they get from others (social support) influence how they fare.

16 December, 2023

Low-Dose Naltrexone Falls Short For Fibromyalgia

Women with fibromyalgia who received low-dose naltrexone showed no significant improvement in pain at 12 weeks, compared with those who received placebo in a randomized trial.

15 December, 2023

LSD And Psilocybin Show Potential As Effective Painkillers, Outperforming Opioids

A recent study suggests that classic psychedelics like LSD and psilocybin could be more effective pain relievers than opioids, with the potential to increase efficacy over time without developing tolerance. This contrasts sharply with opioids, which often lead to tolerance and addiction.

15 December, 2023

The Lived Experiences Of Oropharyngeal Dysphagia In Adults Living With Fibromyalgia.

Fibromyalgia is a chronic pain condition which has recently been linked with eating, drinking and swallowing difficulties (dysphagia). However, to date, sample sizes within completed research are small and study designs heterogeneous, and therefore, little is known about the lived experiences of dysphagia among people with fibromyalgia. To go some way towards addressing this gap in the literature, this study collected and analysed the first-hand experiences of the physical symptoms, the psychosocial impacts and environmental factors that influenced the lived experience of a sample of people living with fibromyalgia-associated dysphagia.

14 December, 2023

Association Between Elasticity Of Tissue And Pain Pressure Threshold In The Tender Points Present In Subjects With Fibromyalgia: A Cross-Sectional Study

Fibromyalgia (FM) is a multicomponent illness and despite its worldwide prevalence, a complete understanding of its aetiology and pathogenesis remains unclear. The goal of the study is to analyze the level of association between elastic properties of tissue measured by strain elastography (SEL) and pain pressure threshold (PPT) in the characteristic painful points described in patients suffering from FM. This was a cross-sectional, observational study. A sample comprised of 42 subjects with FM was recruited from a private care centre. The occiput, low cervical, trapezius, supraspinatus, paraspinous, lateral pectoral, second rib, lateral epicondyle, medial epicondyle, gluteus, greater trochanter, knee, and anterior tibial PPTs were bilaterally assessed using a standard pressure algometer and elastic properties of tissue were evaluated by SEL. Linear regression analysis showed significant associations between SEL and dominant trapezius PPT (β = 0.487, 95% CI [0.045, 0.930], p = 0.032) after adjustments for the age, body mass index, and menopause status (higher SEL and higher pain sensitivity). No significant associations between SEL and the other PPTs variables were found in women diagnosed with FM. The PPT of the dominant trapezius is associated with SEL measurements in subjects suffering from FM. More studies are required to fully explain the underlying mechanisms.

14 December, 2023

Effect of Hypnosis On Pain, Anxiety, And Quality Of Life In Female Patients with Fibromyalgia: Prospective, Randomized, Controlled Study.

This prospective, randomized, controlled study aimed to investigate the effects of standardized adjuvant hypnosis on pain, depression, anxiety, aerobic exercise practices, quality of life, and disease impact score in female patients with fibromyalgia syndrome (FMS). This study included 47 female patients with FMS who had been under treatment for at least six months. The hypnosis group ( = 24) received a total of three hypnosis sessions and was taught to patients’ self-hypnosis. The patients in this group practiced self-hypnosis for six months. During this period, all patients also continued their medical treatment. The Visual Analogue Scale (VAS) was used to determine the intensity of pain. At the end of the six-month follow-up period, it was determined that the patients of FMS with hypnosis therapy had lower pain intensity, FMS symptoms, depression, and anxiety symptoms, and better well-being than those in the control group ( < .05). Standardized hypnosis is an effective method in reducing pain, depression and anxiety symptoms and improving quality of life in patients with FMS.

13 December, 2023

New Guidelines Offer Hope For Fatigue Management In People With Inflammatory RMD

Fatigue is common in people with inflammatory rheumatic and musculoskeletal diseases(RMD). The causes of fatigue are not well understood, and it is likely that they vary between people and over time. From a patient perspective, fatigue has a significant and detrimental impact on daily life, and it is a priority to address. Although our appreciation of the impact of fatigue has grown in recent years, it is complex to manage. We have evidence about some approaches that can help, but we have not had any recommendations to guide health professionals and patients. As a result, fatigue care and support is often variable and fragmented. To address this, EULAR has drafted new recommendations for fatigue management in people with an Inflammatory RMD. The work was presented at the 2023 EULAR congress and will be published in November 2023 in the Annals of Rheumatic Diseases. The work was supported by two systematic literature reviews, which explored the efficacy of pharmacological and non-pharmacological interventions aimed at reducing the severity and impact of fatigue and helping people to develop good coping strategies.

13 December, 2023

Assessment Of Post-COVID-19 Fatigue Among Female Survivors 2 Years After Hospital Discharge: A Nested Case–Control Study

Research published BMC Public Health.

12 December, 2023

Chronic Fatigue Syndrome Is Not Rare, Says New CDC Survey. It Affects 3.3 Million U.S. Adults

Health officials on Friday released the first nationally representative estimate of how many U.S. adults have chronic fatigue syndrome: 3.3 million. The Centers for Disease Control and Prevention’s number is larger than previous studies have suggested, and is likely boosted by some of the patients with long COVID. The condition clearly “is not a rare illness,” said the CDC’s Dr. Elizabeth Unger, one of the report’s co-authors.

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