In the News

06 March, 2023

THC And CBD-Rich Cannabis For Fibromyalgia

New studies offer hope for treating a confounding condition.

05 March, 2023

Study Finds Unique Epigenetic Biosignature In Individuals With Post-COVID Syndrome

A reprogramming of which genes are active, and which are not, is visible in post-COVID sufferers. This is shown in a study from Linköping University, Sweden, on a small group of individuals. The researchers can see that genes associated with taste and smell, as well as cell metabolism, are affected in individuals with post-COVID syndrome. These findings may ultimately contribute to the development of new diagnostic tools for this and similar diseases.

05 March, 2023

"Scottish Good Practice Statement On Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS)"

From the Scottish Government: "This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally published in 2010. The Scottish Government has partially updated it to insert key recommendations from the NICE Guideline on ME/CFS published in October 2021."

Note: ME/CFS SA does not endorse the UK's NICE Guidelines.

05 March, 2023

Much Has Been Learned About Long COVID, And Much Remains To Be Learned

This much researchers agree upon: Long COVID is a serious and sometimes debilitating condition that can strike previously healthy people after even mild bouts of COVID-19. And rapid progress is being made in understanding it. But three years into the pandemic, much about long COVID—what causes it, how to treat it, even what to call it—is still being sorted out.

04 March, 2023

Is Long COVID ‘Psychogenic’? Challenging Claims That The Disease Is ‘All In The Head’

With the Centers for Disease Control and Prevention (CDC) estimating that nearly one in five people develops long-term symptoms after a Covid infection, it is time to rise up and stop the gaslighting—the rejection of the latest research and the experience of patients. We must stop this dismissal before long Covid joins ME/CFS and persistent Lyme as just one more contested disease.

04 March, 2023

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia: PR3-Versus MPO-ANCA-Associated Vasculitis, An Exploratory Cross-Sectional Study

Persistent fatigue is a common complaint in ANCA-vasculitis (AAV) patients and has a profound impact on patient's quality of life. The symptoms associated with this fatigue mirror those found in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia. Etiologic and pathophysiologic differences exist between PR3- and MPO-ANCA disease, yet differences in their fatigue manifestations have not been well researched. We compared fatigue and its associations in healthy controls, AAV patients and fibromyalgia controls.

04 March, 2023

‘It’s Hell’: Reality Of Heat Inside Australian Rentals Revealed

Renters, including one with ME/CFS, are being forced to suffer through “hellish” conditions with temperatures inside homes reaching over 40 degrees this summer.

03 March, 2023

Investigating The Association Between The Symptoms Of Women With Fibromyalgia, Digestive Function, And Markers Of The Microbiota Of The Gastrointestinal Tract (The FIDGIT Study): Study Protocol

Fibromyalgia a common idiopathic condition affecting around 1.4% of adults globally. Its signature symptom is chronic widespread pain, with a constellation of somatic and psychological symptoms. Fibromyalgia is associated with significant reductions in quality of life, yet to date there is no biochemical marker for its diagnosis. Previous studies have indicated a strong association with gastrointestinal dysfunction, and more recently, alterations to the gut microbiome. No studies have examined the inter-relationship between fibromyalgia, gastrointestinal dysfunction, and the microbiome. This prospective observational case-controlled study will gather data on gastrointestinal function, dietary intake, fermentation patterns of ingested carbohydrates, and symptoms commonly associated with fibromyalgia. These will be evaluated alongside human gene expression and metatranscriptomic analysis of the oral and faecal microbiome.

03 March, 2023

More Than Half Of Long Covid Patients Suffer From Organ Damage Up To One Year After Covid Infection

A recent study published in the Journal of the Royal Society of Medicine, researchers analyzed MRI data of long Covid patients and found that mild organ damage continued to take place in 59% of the patients even up to one year after they got infected with the SARS-CoV-2 virus. From the MRI data, the researchers observed that mild damage took place in patients’ heart, lungs, kidneys, liver, spleen, and pancreas.

03 March, 2023

Inspirational Story Of Victory In The Library Of Alexandria

"Bibliotheca Alexandrina" has organized at the Conference Center a lecture entitled “Invisible Disabilities”, in which it hosted Dr. Ayman Youssef, one of the inspiring models of people with disabilities who suffers from a rare disorder in the central nervous system and muscle marrow. Dr. Ayman was able to face his illness by specializing in it as the first Egyptian and Arab to present the first international scientific thesis on Invisible disabilities and their syndromes of fibromyalgia disorders and chronic fatigue syndrome known as myalgic encephalomyelitis- or Systemic Exertion Intolerance Disease, as well as central sensitivity syndrome in the brain and spinal cord, through his studies for a master's degree and a professional doctorate from New York International University.