In the News

09 September, 2021

'We Hope That We Can Stop Another Child From Doing What Daisy Did'

*WARNING: This article contains content about suicide that may be triggering for some readers.
A profile of ME/CFS sufferer Daisy Long, who recently took her own life.

06 July, 2020

'What If I Don't Get Better?' Some COVID-19 Survivors Struggle With Symptoms For weeks, Even Months, Mystifying Doctors

Profiles of US post-COVID-19 sufferers.

14 July, 2020

10th Annual Maria Stein Shrine Art Show Sees The Biggest Turn-Out In Artists And Submissions

A report on the Maria Stein Shrine’s 10th annual art show and sale, featuring Fibromyalgia sufferer Carol Rosenbeck.

14 September, 2021

11 Great Squash Books For National Book Day

An article featuring books on the sport of squash, including Shattered: A Champion’s Fight Against A Mystery Illness, by Peter Marshall. Peter's illness was Chronic Fatigue Syndrome.

02 March, 2022

11 Things Doctors Have Learned About Long COVID

The US Centers for Disease Control describes post-COVID conditions as ongoing or new symptoms occurring a month or more after a COVID-19 infection. It is estimated that between 10% to 30% of people who had COVID-19 may experience long COVID.

25 November, 2022

12 Holiday Gifts For Caregivers And The People They Care For

How do you take care of yourself when you feel overwhelmed taking care of someone with a disabling chronic illness? Can an anti-inflammatory diet help prevent migraines? What is “ableism” and how does it harm the disabled? Will they ever find a cure for long covid? The answers to these and other questions can be found in our annual holiday gift guide. If you’re a healthcare provider, caregiver or you live with chronic pain and illness -- here are 12 books that would make great gifts over the holidays. Or you can always “gift” one to yourself.

01 June, 2023

12 Most Common Symptoms Of Long Covid

Since the first cases started appearing in 2020, medical experts have been baffled by Long Covid, a poorly understood disorder that causes chronic fatigue, insomnia, brain fog and dozens of other symptoms long after the initial infection with COVID-19. The symptoms vary so much from person to person that identifying the cause is difficult. Is it Long Covid? Fibromyalgia? Chronic fatigue syndrome? Lyme disease? Or just a bad case of the flu? A new study led by the National Institutes of Health's RECOVER Initiative has identified the 12 most common symptoms of Long Covid, with the goal of creating a working definition of the condition to help make it easier to diagnose and treat.

16 April, 2024

12-Year-Old Describes 4-Year Battle With Long COVID

Theo Huot de Saint-Albin was a 9-year-old elementary school student when he first contracted COVID-19 in July 2020, near the start of the coronavirus pandemic. Four years later, as much of the world has moved on from the pandemic and resumed normal life, Theo, now nearly a teenager, is still battling the effects of long COVID. "What happened directly after COVID-19 was worse than my actual COVID-19," Theo, now in seventh grade, told "Good Morning America." For me, I have chronic migraines ... it doesn't mean the migraine is terrible every day. It's very unpredictable. It goes in waves. But it's always there. It never leaves."

12 May, 2023

12th May: World Chronic Fatigue Syndrome (Myalgic Encephalomyelitis) Awareness Day

12th May is marked as World Chronic Fatigue Syndrome Day to spread awareness about this rare medical condition, which was first observed in 1993. Thomas Hennessy chose the day of 12th May to commemorate the birthday of Florence Nightingale who was the founder of modern nursing, and, in her later ages, she displayed symptoms of an illness resembling myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) or fibromyalgia.

06 June, 2023

18 Percent Of Long Covid Patients In Switzerland Still Sick After Two Years

A recently updated Swiss study shows up to 18% of those surveyed with Long Covid had not recovered even two years after infection.